2020-10-17 22:55
I have decided that I am going to try again. I am going to start the process again. I am going to contact the movemnet disorder specialist again and I am going to ask them for another lookse… Read More
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When Your Body Betrays You Blog
movementdisordersblog.wordpress.com
Living with, coping with and accepting dystonia.
2020-09-27 00:23
It isn’t morning right now. In fact it is almost 7 in the evening and I’m sitting on my old green sofa eating out of a bag of raw cashews, but I think its funny how I always find… Read More
2020-09-12 23:05
I woke up tired exhausted and achy today, not due to FND and especially not due to COVID, but more because of that time of month, my menstrual cycle. I am positive that my FND makes my perio… Read More
2020-04-10 13:59
Two days ago I had my first biopsy. I have no other way to describe this experience, but to say it felt as if I had been violated again, not through the fault of any of the doctors or nurse… Read More
2019-12-30 03:52
It been more than a year since my last post. I have thought about many many times before today, but the words never came to me. What was I suppose to talk about? Everything was the same. No… Read More
2018-03-25 18:04
Earlier this month my cousin passed away, the one with cancer. In all the time that she was sick I didn’t visit. Before she was sick I’d go with my parents to visit her and her f… Read More
2017-12-21 02:15
Just a ThoughtDr. Hope didn’t see me. One of his colleges did. I found out the day of my appointment on the ride downtown to the office. I guess they didn’t understand that I on… Read More
2017-12-05 02:34
It’s the wording. It’s the way someone says something, the tone, the timing, the vocabulary used. It makes a difference when you are sitting across from someone with power tellin… Read More
2017-08-10 19:34
I found myself staring at his picture after I hung up the phone with the hospitals front desk receptionist (or whatever the politically correct term is these days). I just stared at his pict… Read More
2017-08-03 16:24
I was athletic. I was in martial arts. I ran. I worked out. I spent time outside and gardened, walked stairs instead of riding elevators. I parked far to walk farther. I practiced yoga. I wa… Read More
2017-07-31 03:08
I don’t know if it’s age, I’m almost 40 yrs young, or if its dystonia, but I notice that I’ve lost my patience. I save articles, blog posts, links, books, magazine ar… Read More
2017-07-28 04:45
My teachers are aware of my dystonia or rather they are more aware of the severity of it now that more of my symptoms have surfaced during the day. Actually, this is what happened. My ex cam… Read More
2017-06-18 17:47
I’ve been avoiding everything or more like everyone. Not because of the dystonia so much but more because I don’t feel the same anymore. I’m not sure what to say to people… Read More
2017-03-01 22:00
I saw a personal video of a baby with dystonia. Despite what its body was going through this tiny thing of a few months old looked almost amused or entertained by what his body was doing. He… Read More
2017-03-01 21:57
I don’t know what it is that has caused me to have multiple episodes of dystonic storms/attacks over the past two weeks. I don’t know if its stress as my cocky neurologist who sa… Read More
2017-03-01 21:32
We were talking, while walking, our rounds around our neighboring street, when I discovered and he discovered how angry I am; how much pent up anger I have. I let it out. I let it all out.
I… Read More
2017-02-25 21:55
I have a cousin with Stage 4 cancer. My mother told me this over the phone about a cousin I’ve seen maybe a handful of times in all my life. I remember her face, but I haven’t se… Read More
2017-01-24 04:38
PerspectiveA few weeks ago an ex-boyfriend from high school messaged me on Facebook. We’ve been Facebook friends for a while, but not really. He sees my posts. I see his. That is about… Read More
2017-01-09 17:42
Last month with the holiday break, less work, less working out and plenty of lazy living I gained a few pounds and had less “dystonic” episodes. The same thing happened las… Read More
2016-12-13 03:43
going in circlesIn November I saw another doctor. By chance my doctor rescheduled my appointment to March 2017. Fed up, I wrote a complaint email and surprisingly I was asked if I would mind… Read More
2016-10-15 17:06
My time to post these days is limited. School has me exhausted with studying. What I will say is this. I have spent a lot of time crying in his arms as I struggle to face the dystonion posse… Read More
2016-09-20 03:26
I wish I had something profound to say. I wish I could hook you with my first line and then reel you in for the rest, but truth be told I am tired. I am too tired to blog, too tired to think… Read More
2016-09-04 04:19
Sitting here in my Ford escape, parked under the few small tree/bush shade available,
Dystonia Bluesabout 15 minutes before work I’m thinking about dystonia. I’m thinking about t… Read More
2016-08-30 02:17
A few weeks ago I posted a link to this blog in a few dystonia support groups. Then I asked if anyone would be willing to let me interview them and post their answers on this blog. To m… Read More
2016-08-26 02:52
A few weeks ago I posted a link to this blog in a few dystonia support groups. Then I asked if anyone would be willing to let me interview them and post their answers on this blog. To… Read More
2016-08-22 02:57
A few weeks ago I posted a link to this blog in a few dystonia support groups. Then I asked if anyone would be willing to let me interview them and post their answers on this blog. To m… Read More
2016-08-20 16:49
I am grateful that on most days I am for the most part functional. I am grateful that my dystonia has not affected my job or my life in such a profound way as it has affected some of my fell… Read More
2016-08-15 14:21
So my boyfriend and I have been on shaky grounds recently, not because the relationship is about to go south. No, instead it is moving forward and we both want it, but it is so unclear as wh… Read More
2016-08-08 13:10
At my last doctors visit with my PCP, she was delighted the medicine is helping my symptoms. I admitted to her that I forget to take it sometimes. Surprisingly she told me it was a good… Read More
2016-07-14 20:49
Depression by Eloquent ExistanceThe good news is that today, after months of waiting to see one, I was finally able to see a movement disorder specialist. As expected the moment I open… Read More
2016-06-29 00:12
Uplifting by Eloquent ExistanceWhen I was in high school I fell in love with a looser, except I didn’t know he was a looser until we broke up and I stepped out of the box and grew up t… Read More
2016-06-15 16:25
*I posted summarized version of this in one of the online dystonia support groups a few days ago*
About two years ago or so I earned my purple belt in martial arts. About that time or so my… Read More
2016-05-19 14:43
Yesterday evening was my 4th day on this new medication. My boyfriend made sure to remind me about the medication right after a spasm/breathing episode in the shower. I suddenly felt very ti… Read More
2016-05-16 13:36
I cried a lot last night as I took that pill. It was hard to swallow, because I couldn’t stop crying, because I couldn’t swallow my worries, my fears, my pride. Taking it me… Read More
2016-05-09 14:58
There are these moments when I feel normal again. There is no pain. There is no pain. My muscles don’t lock out away from me or in toward me. There are no funny wiggles or struggles to… Read More
2016-05-03 13:56
I’ve been trying to get out of this funk I’ve been in these past few weeks, especially since the spasms have begun to affect my capacity to breathe deeply. I had a few epis… Read More
2016-04-29 04:23
When the pain lasts all day, it’s hard to control my anger by the end of the day. Most of the time I don’t even know I am in pain until I put my feet up after the kids go to bed… Read More
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