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The sad case of Alfie Evans

Little Alfie Evans, born on May 9, 2016, died in the early hours of the morning on Saturday, April 28, 2018.

He spent much of his short life in a ‘semi-vegetative’ state:

and has a degenerative neurological condition doctors had not definitively diagnosed.

Specialists say his brain has been “eroded”.

Alfie’s parents, Tom Evans, 21, and Kate James, 20, had been in courts in the UK and Europe in an effort to save their son.

On Monday, April 16, the couple’s lawyer asked British Court of Appeals judges to allow the child to travel to Italy for life-saving treatment, but three judges — Lord Justice Davis, Lady Justice King and Lord Justice Moylan — ruled against the appeal.

Earlier this year, in February (emphases mine):

Mr Justice Hayden ruled that doctors at Alder Hey Children’s Hospital in Liverpool could stop treating Alfie against the wishes of his parents following hearings in the Family Division of the High Court in London and Liverpool.

Specialists at Alder Hey said life-support treatment should stop and Mr Justice Hayden said he accepted medical evidence which showed that further treatment was futile.

Alfie’s parents want to move their son from Alder Hey to a hospital in Rome.

The couple said Italian doctors are willing to treat the little boy and an air ambulance is available.

But Mr Justice Hayden said flying Alfie to a foreign hospital would be wrong and pointless.

Court of Appeal judges upheld his decisions.

Supreme Court justices and European Court of Human Rights judges refused to intervene.

They are now arguing that Alfie is being wrongly “detained” at Alder Hey and have made a habeas corpus application.

A writ of habeas corpus – Latin for “you may have the body” – is a legal manoeuvre which requires a court to examine the legality of a detention …

Mr Justice Hayden dismissed that habeas corpus claim last week.

Appeal judges upheld Mr Justice Hayden’s decision but said doctors should keep treating Alfie pending a Supreme Court decision.

By April 24, Alfie, at Alder Hey and off life support, was still alive:

Doctors have been left “gobsmacked” after Alfie Evans’ life-support was withdrawn but he continued to live, his father has said.

Tom Evans said it was obvious that the youngster was breathing unassisted “within a few minutes” of life-support being withdrawn on Monday night …

Speaking outside Alder Hey Children’s Hospital in Liverpool on Tuesday morning, his father said Alfie’s life-support should be reinstated due to his remarkable progress.

“He is still working, he’s doing as good as he can,” he told reporters …

“Because he’s been doing it for nine hours totally unexpected, the doctors are gobsmacked and I do believe he will need some form of life-support in the next couple of hours and I think he ought to be respected and given that.”

Alfie’s parents want treatment to continue and want to fly him to a hospital in Rome.

The Italian government had already taken care of foreseeable issues:

His case has been highlighted by the Pope, who expressed support for the couple, and he has been granted Italian citizenship.

Amazing.

Alfie’s father had to persuade Alder Hey doctors to give the little mite oxygen and water. Why wouldn’t they have done that of their own accord?

Mr Evans said that he had a “lengthy talk” with doctors and pleaded with them to give his son oxygen.

“They left him for six hours without food, water and oxygen,” he said.

“I felt blessed when they confirmed they were going to give him his water and his oxygen.

“He’s now on oxygen. It’s not changing his breathing but it’s oxygenating his body.”

Also on April 24, LifeNews.com reported that the air ambulance was actually at the hospital ready to transport little Alfie to Rome:

An air ambulance has arrived outside the hospital where little Alfie Evans is located. Alfie has breathed on his own and has survived for over 18 hours after the Children’s Hospital yanked his life support.

Alfie has defied doctors’ expectations to this point and his parents are headed back to court to fight for his life further. They are hoping to be able to get life support restored and also want to be able to take him to Italy, which granted him citizenship yesterday

As one British media outlet reports, “Paul Diamond, who will represent the parents this afternoon, is expected to argue that it cannot be in Alfie’s best interests to be left at Alder Hey Hospital and that he should instead be flown overseas – with an air ambulance already ready and waiting.”

He will argue that Alfie should be allowed to travel to Italy where doctors are ready to care for him,” according to the Christian Legal Centre (CLC). The organization said the aircraft was on hand to transport the little boy to a hospital in the country. “The court and the hospital should welcome the intervention of the Italian government and let Alfie travel to Italy.”

A representative of the Italian Embassy would attend the hearing.

The pope tweeted:

It didn’t matter. Later that day, LifeNews.com posted an update:

The judge in the case just prohibited Alfie’s family from taking him to Italy for care and treatment and potential experimental treatment for his rare degenerative neurological disorder.

The article went on to say that many people were critical of the courts’ callous decisions, including physicians and healthcare experts:

Today, a British doctors group, The Medical Ethics Alliance, expressed its horror over the treatment of Alfie Evans that it called a “medical tyranny.”

And Italy’s Healthcare Chief has slammed the decisions by UK courts to treat Alfie the way that they have. The President of the Italian National Institute of Health lambasted the UK High Court’s decision yesterday on Alfie Evans’ that resulted it the children’s hospital being allowed to remove life support over Alfie’s parents’ objections.

On Wednesday, April 25, news emerged (BT.com) that, despite everything being in place — including a German air ambulance — Mr Justice Hayden, ruling from Manchester, would not allow Alfie to travel to Italy; Alfie could only return to his home from Alder Hey. Yet, hope continued as the case would be heard again that afternoon:

A spokeswoman for the Christian Legal Centre, representing Alfie’s parents, said the case is due to be heard at the Court of Appeal on Wednesday afternoon.

On Tuesday a judge ruled the boy may be allowed home from Alder Hey Children’s Hospital, but will not be allowed to go to Rome for further treatment.

The 23-month-old confounded doctors’ expectations when he continued to live after life-support was withdrawn on Monday night, his father, Tom Evans, said.

“The court of appeal have reached out to us and said they are going to set back three judges to hear the case,” Mr Evans told reporters outside hospital on Tuesday night.

In reality, he could be in Italy right now. We all know the military air force are ready to take him and a team of doctors are there.

We’ve also got a German air ambulance team, who attempted to take him in the first place, ready… the reality is these people are eager to get him out of the country and I’m not giving up because Alfie’s breathing away, he’s not suffering.”

This is where the story gets stranger:

At an earlier High Court hearing in Manchester, Mr Justice Hayden described Alfie as “courageous” and a “warrior”, but said the case had now reached its “final chapter”.

He rejected claims by Mr Evans that his son was “significantly better” than first thought because he had been breathing unaided for 20 hours after doctors first withdrew life support.

Instead, the judge said the best Alfie’s parents could hope for was to “explore” the options of removing him from intensive care either to a ward, a hospice or his home.

But a doctor treating Alfie, who cannot be named for legal reasons, said that for Alfie to be allowed home would require a “sea change” in attitude from the child’s family, and they feared that in the “worst case” they would try to take the boy abroad.

Mr Justice Hayden ruled out the family’s wishes to take the child to the Bambino Gesù hospital in Rome, following interventions from the Pope and the Italian authorities.

Meanwhile, the child’s story attracted the attention of the Polish president:

Merseyside Police announced they were monitoring social media, which attracted critical responses:

However, Wednesday’s hearing produced no positive news and was the final legal challenge. BT.com reported:

The parents of Alfie Evans have failed in an 11th-hour attempt to persuade judges to let them move the terminally-ill youngster to a foreign hospital …

A High Court judge ruled against them on Tuesday and three Court of Appeal judges dismissed a challenge to that decision on Wednesday.

Lawyers representing Alder Hey bosses said Alfie’s condition was irreversible and there was no evidence that it had changed.

They said the fact that he had continued to breathe unaided might have surprised members of the public but had not surprised specialists.

Barrister Michael Mylonas QC, who led Alder Hey’s legal team, said it had never been suggested that Alfie would die as soon as life-support treatment stopped.

He said the couple’s challenge should be dismissed.

Barrister Sophia Roper, who represents Alfie and takes instructions from a court-appointed guardian, agreed.

Lord Justice McFarlane, who headed the appeal court panel of judges, said Alfie’s parents were trying to take “one last chance”.

But he said there was no prospect of the couple’s challenge succeeding.

He said Alfie was in “the middle” of a palliative care plan.

The two other appeal judges, Lady Justice King and Lord Justice Coulson, agreed.

Lady Justice King said there was “acceptance” that Alfie was dying.

It is unclear to the average person why a baby with his parents around him would need a court-appointed guardian.

A greater question remains: why would a court forbid loving parents to take their child out of the country for medical treatment when a) transport is at the hospital and b) doctors are on standby at the final destination? It is very strange.

On the morning of Thursday, April 26, BT.com reported that, despite the court’s decision the previous day, Alfie’s father was not giving up on his son’s life:

The parents of Alfie Evans are expected to meet doctors to discuss taking their terminally ill son home.

Speaking outside Alder Hey Children’s Hospital in Liverpool on Thursday, his father Tom Evans, 21, said he hoped to have a “positive” meeting with medical staff

Mr Evans told reporters: “He’s been off a ventilator for three days now, there’s been no deterioration.

“He hasn’t woke up, he’s still a little bit weak, but what we ask for is to go home to sustain his life.”

He said the family still had “appeals to explore”.

Mr Evans added: “All I ask for now is for this meeting to be a positive one, and I hope to have Alfie, on the terms of mine and Alder Hey, to be home within a day or two.

If the meeting doesn’t go well today, well then, I’ll go back to court.”

He accused doctors at the hospital of being “wrong” about their diagnosis: “Alfie lives, comfortably, happily, without ventilation, without any form of ventilation.

That must be enough for you now to consider that Alfie may prove you wrong.”

Alfie and his parents attracted much local support:

The hospital was unhappy:

Police remained outside the hospital on Thursday, after Alder Hey said its staff had experienced “unprecedented personal abuse”.

In an open letter, the hospital chairman Sir David Henshaw and chief executive Louise Shepherd: “Having to carry on our usual day-to-day work in a hospital that has required a significant police presence just to keep our patients, staff and visitors safe is completely unacceptable.”

What else was the public to think other than that human rights were at stake, seeing court-controlled families?

Furthermore, why wouldn’t a physician would agree to let a baby and his parents travel to another country if they could get life-saving treatment?

Of course people are going to be upset. After all of this stonewalling, emotions were running high.

Public doubt and bemusement about Alfie’s situation only increased on the morning of Friday, April 27, when an NHS physician appeared on ITV’s This Morning. CNSnews.com has the story (emphases in the original):

Forcing 23 month-old Alfie Evans to die by starvation “is not killing,” Dr. Ranj Singh argued on U.K.’s “This Morning” ITV program Friday, Express reports.

Withdrawing life-support and refusing to allow Alfie’s parents to take him home, feed and care for him, is, instead merely “redirecting care,” Dr. Singh said:

This is not the killing of a child – this is redirecting care to make them more comfortable.”

… Dr. Singh doubled down on his claim, framing the withdrawal of life support as a way to make patients more comfortable and give them “the most dignifying life”:

“Withdrawing life support is not killing someone. It is redirecting care to make them more comfortable and give them the most dignifying life that you can.”

Dr. Singh also said pro-life Alfie supporters outside the Alder Hey Hospital protesting to save Alfie’s life are behaving “disgustingly”:

“There’s a small proportion who have – I will say it – behaved disgustingly.”

Perhaps, but it is hard to have empathy for a medical institution who will not allow a patient to seek treatment elsewhere.

That day, LifeNews.com reported that the Evans family had asked for protests to ease so that Alfie’s parents could work with the hospital for his release (emphases mine):

As LifeNews reported, Alfie Evans’ father Tom Evans called for supporters of Alfie and his family to “stand down” so they can begin “building a bridge” with Alder Hey Children’s Hospital and its staff.  The statement from Alfie’s father was surprising given the animosity that had developed between the Evans family and the hospital

But perhaps seeing that there is little opportunity left to fight for Alfie’s rights and their right to take him abroad or take him home or sensing a need to appease the hospital to bring him home, Tom Evans is now striking a conciliatory tone.

Now, Alfie’s uncle Daniel Evans has posted on Facebook that he believes things are progressing to a point where Alfie could go home soon.

Evans also hinted that protests could continue if Alder Hey officials don’t send Alfie home. Daniel Evans said Alfie’s dad Tom didn’t want to approach the press or have any further protests, but added that this would be “until something changes with the hospital.”

He wrote: “I have seen that people are believing this is the end of Alfie’s army? Tom has released a statement that states he will not approach media or want any protests. This will be until something changes with the hospital but we hope and pray it doesn’t.”

He continued: “They aim to get him where they have always desperately wanted him HOME. And with today’s positive meeting this could be a goal complete for Tom and Kate. I will continue to update when necessary.”

On Saturday, April 28, Alfie breathed his last. BT.com reported:

The parents of Alfie Evans have said they are “heartbroken” after their son died on Saturday morning.

The 23-month-old – who was being treated at Alder Hey Children’s Hospital in Liverpool – died at 2.30am, Kate James and Thomas Evans said on Facebook.

The post said: “Our baby boy grew his wings tonight at 2:30 am. We are heart broken. Thankyou everyone for all your support.”

Alder Hey offered their condolences — posted on their website. Think of the staff:

In a statement issued on its website, Alder Hey Children’s Hospital said: “We wish to express our heartfelt sympathy and condolences to Alfie’s family at this extremely distressing time.

“All of us feel deeply for Alfie, Kate, Tom and his whole family and our thoughts are with them.

“This has been a devastating journey for them and we would ask that their privacy and the privacy of staff at Alder Hey is respected.”

Later that day in Liverpool:

The family of Alfie Evans said they have been left “shattered” by his death, as more than 1,000 supporters gathered to release balloons in his memory.

The terminally ill 23-month-old, who was being treated at Alder Hey Children’s Hospital in Liverpool, died at 2.30am on Saturday, his parents Kate James and Thomas Evans said.

Hundreds gathered in Springfield Park, next to the hospital, to release blue and purple balloons in his memory at 2.51pm – exactly 12 hours after he was officially pronounced dead.

Mr Evans and Ms James, both in their early 20s, did not attend the event but Mr Evans’s sister Sarah told the crowd: “I just want to thank you all for coming today

In an editorial for Fox News, Newt Gingrich reminded his readers that life comes from God. He also mentioned another relatively recent British case involving the late, little Charlie Gard. Please read it all. An excerpt follows:

The secular system has asserted its right to define what lives are worth living and is determined to prevent its authority from being questioned. Alfie Evans’ life – like Charlie Gard’s before him – has been determined to be limited by the standards of the secular state, and therefore without value.

These tragic government-imposed death sentences for innocent infants should frighten all of us about increasing secularism in society and the steady shift towards a totalitarian willingness to control our lives – down to and including ending them – on the government’s terms.

This is a direct assault on the core premise of the Declaration of Independence. We Americans asserted that we “are endowed by (our) Creator with certain unalienable Rights, that among these are Life, Liberty, and the Pursuit of Happiness.” In the American Revolution, in our fight against the British crown, we asserted that rights come from God – not from government.

However, our secular, liberal culture increasingly dismisses the concept of God and asserts that our rights come from a rational contract enforced by government.

In the original American model, we asserted our God-given rights against the power of a potentially tyrannical government. In the emerging left-wing secular order, since there is no God our rights depend on a secular state controlling itself.

Britain is giving us a vivid, tragic sense of how dangerous and heartless government tyranny can be once God is rejected and there is nothing between us and the government.

Ironically, this latest decision was made the same year Stephen Hawking died – 55 years after he was diagnosed with ALS (commonly known as Lou Gehrig’s disease) and told he had only two years to live.

Apparently, the British government learned no lessons from Hawking’s remarkable lifetime of work and achievement, which he pursued despite having to battle an extraordinarily challenging illness

When you read about these two babies being denied life support by a supposedly free government, remember what John Donne warned when he wrote “any man’s death diminishes me, because I am involved in Mankind, and therefore never send to know for whom the bell tolls; it tolls for thee.”

In these two years, we have seen two babies effectively sentenced to death by a government we would once have considered humane. What will the next horror be?

Breitbart has an excellent article not only on Alfie Evans and Charlie Gard but also on other children — mostly in the UK — who ran up against the system. These cases have attracted international attention:

The ill toddler [Alfie] joins a list of other children removed from life support against their parents’ wishes, whose stories have touched the hearts of people around the world and whose fight for their short lives found the support from high-profiled figures such as Pope Francis, Polish President Andrzej Duda, European Parliament President Antonio Tajani, and U.S. President Donald J. Trump.

Charlie Gard was treated at London’s Great Ormond Street Children’s Hospital, known for its clinical excellence. However, they were not only unable to treat the baby’s mitochondrial condition, they also refused — with the aid of the courts — to release him to receive treatment outside of the UK:

The courts ordered the hospital take the child off life support, despite the Gards fundraising over one million pounds for Charlie’s transportation and private hospital care, and numerous figures pledging their help and support including Pope Francis and U.S. President Donald Trump. Baby Charlie died on July 28th, 2017.

During one of the Gards’ many court cases, the family spokesman addressed media to say that Charlie had “effectively being taken prisoner by the NHS and by the State”, asking: “Whose child is he? Is he the state’s child? Is he the NHS’s child? Or does this child belong to the parents?”

Earlier this year, on March 7, one-year-old Isaiah Haastrup died at King’s College Hospital in London. Isaiah’s mother had a difficult delivery at the hospital, also known for its clinical excellence:

Within a month of the European Court of Human Rights (ECHR) rejecting the Evanses plea to overturn Alder Hey’s decision for the first time, on March 6th, Lanre Haastrup and Takesha Thomas lost their battle at the Strasbourg court to stop King’s College Hospital doctors from removing life support from their son Isaiah.

Isaiah suffered brain damage during his mother’s complicated labourwhich King’s College Hospital admitted it was partly responsible for, due to “specific issues in monitoring” during his birth.

At one point, the hospital was denying Mr. Haastrup visitation of his son when he was near death, administrators claiming the father had ‘verbally abused’ hospital staff in an argument over the withdrawal of baby Isaiah’s life support.

Another British life-support issue occurred with three-year-old Dylan Askin, who was suffering from a rare form of lung cancer:

In 2016, doctors told Kerry Askin that her three-year-old son Dylan would not survive his rare form of lung cancer, influencing the mother to decide to turn off his life support.

Mrs. Askin had her unresponsive son baptised on Good Friday and the family agreed to have him removed from life support.

However, instead of dying, Dylan improved. He’s alive — and well — today:

After life support began to be removed, Mrs. Askin related that “once the muscle relaxant was turned off… we discovered he needed more sedation. Upon doing that he slowly improved!”

By Easter Sunday he was stabilised and discharged just two weeks later from hospital. Two years later, Dylan had beaten his illness.

Then there was the case of Ashya King in 2014, which was really awful:

Though not an end-of-life dispute, 2014 saw an analogous high profile battle over treatment options for five-year-old Ashya King that resulted in a so-called abduction, an international manhunt, and his parents’ arrest.

British doctors in Southampton had diagnosed young Ashya with an aggressive brain tumour. They operated on his brain and told his parents he would need chemotherapy and radiotherapy.

Ashya’s parents, Brett and Naghemeh King, thought that would be too much for the youngster. They wanted to take him to to the Czech Republic for proton therapy instead. This is where the drama started:

Doctors stood by their plan of treatment, so shortly after, Aysha’s parents took him from Southampton General Hospital and boarded a ferry to France. The parents were arrested later in Malaga, Spain.

After extradition was denied, a High Court ruling agreed that Aysha could be taken to the Czech Republic for proton therapy.

The proton therapy was highly successful:

Three years later, Ashya was cleared of cancer and according to his father is playing and speaking again.

The Breitbart article also looked at an American case, that of two-year-old Israel Stinson whose life support system was turned off in 2016:

after a Los Angeles Superior Court judge dismissed a restraining order barring the hospital from doing so until September 8th.

Incredibly, had consulted Guatemalan doctors prior to going to California. The Guatemalan physicians allegedly said that:

his condition was improving and that he was not brain dead.

American political commentator Lew Rockwell posted an article originally on American Thinker. Columnist Joe Herring wrote about his grandson who has the same condition as Alfie Evans. Unlike Alfie, now with the angels, Herring’s grandson recently turned 17.

Excerpts follow:

I see Joseph’s innocence in Alfie’s eyes, and I struggle with the marked physical resemblance between Alfie and Joseph at that age. I also vividly recall the doctors counseling my daughter to abort her pregnancy, to save her child from suffering.

He will likely live 18 months, certainly no more than three years,” they told us solemnly. Joseph celebrated his 17th birthday in February of this year

In Britain’s socialized medical system, second opinions are typically given by other NHS physicians, chosen not by the parents or the patient, but by the attending physician who gave the first opinion.  Unsurprisingly, second opinions in the NHS rarely overturn the first.  In this case, however, Alfie’s parents were able to force the hospital to release records for outside review.

Unsurprisingly, Alder Hey’s prognosis has not been confirmed by outside medical professionals.  Indeed, numerous outside experts vehemently disagree with Alder Hey’s conclusions.

The disturbing truth is, the physicians of Alder Hey haven’t even attempted to determine the cause of Alfie’s distress, having decided within months of his birth that his life was not worth living.

In closing, a Telegraph reader made an excellent point (25 Apr 2018 11:42PM) on the misplaced hubris of the NHS and the erroneous death decisions the health service makes:

As one has argued…

“With Italian doctors willing to treat Alfie and a plane standing by to take him to Italy, with his parents desperate to take them up on that invitation, the only conceivable reason the UK would refuse to let him go is because they’re terrified that he really might be successfully treated. If they’re wrong on a question of life and death that’s now being scrutinized internationally, no one would ever trust an NHS end-of-life assessment again.”

Discuss.

Who can say fairer than that?

This must stop now.

In the meantime, my prayers and thoughts go to Alfie’s parents, Tom Evans and Kate James. I thought about them all weekend. May the Lord comfort them in the months and years ahead.



This post first appeared on Churchmouse Campanologist | Ringing The Bells For, please read the originial post: here

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The sad case of Alfie Evans

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