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Her Disease Is Incredibly Rare. So Is Her Dad's Effort to Cure It

Grace Wilsey is Chelsea Clinton's goddaughter. But that's not the only very rare facet of the 8-year-old's life. Four years ago she became one of the first children to be diagnosed with NGLY1 deficiency, a single genetic mutation that causes a host of problems, from muscle weakness to liver issues...


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Her Disease Is Incredibly Rare. So Is Her Dad's Effort to Cure It

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