Hi guys! Things have been crazy around here. We were able to make it home for few days a couple of weeks ago and now we are heading back tomorrow for a few days. Dylan has a routine Eye Pressure Check on Wednesday morning. He still has to go under anesthesia because he will not let the doctor anywhere near his eyes with the probe. I don't blame him, it would be hard for me to do too!! While he is under, the doc will also check his eyesight to see if we have to change his prescription. He has been in the same glasses for 18 months so it is likely that he will need new ones. During the last eye pressure check, the doctor notice a cataract forming in one of his eyes. Hopefully it has not progressed. The doc said that if it continues to get worse, they would most likely need to do surgery to fix it. He said that it may work out in Dylan's favor as he gets older because he could get new lenses implanted into his eyes and eliminate the need for glasses. Hopefully all of this is far down the road!
Wednesday evening we are headed to the capital building to film a video about cord blood donation. There is a group trying to get information about cord blood on the ballot and they want to use Dylan's story to help raise awareness. We are so thankful that the Lord has been able to use Dylan to reach so many people and to help others.
We are also headed home for a special event! Dylan has been chosen as the Leukemia & Lymphoma Society's Boy of the Year to help raise funds by the participants from the Man & Woman of the Year Competition. The final event is on Friday and we are excited to celebrate with everyone! Someone donated white tuxes for the boys! I cannot wait to see how cute they look in them! They will be sporting white tuxes with orange bow ties for Leukemia....I am pretty sure they will steal the show!! I am really hoping Dylan cooperates and wears his snazzy outfit...at least for a few minutes so I can get some photos. And, they are white....not sure how long they will STAY white!!
So what's been going on here in San Diego? We MOVED! We moved on June 1st to the cutest little bungalow guest house located in La Jolla. This house is a gift from God! It is a one bedroom, one bath little house located behind the main house. We are 6 blocks from the beach and about 40 minutes from clinic. We LOVE it here. There is a back patio where the boys can ride their bikes around and play and explore, and there is a nice big living area for us to spread out that has gorgeous natural light. This place makes me happy. The boys can be loud and rambunctious and we are not bothering neighbors to either side of us and below us. WE ARE BLESSED! And on top of it all, it cost a lot less than all of the other places that we could find for June.
The Plan: Dylan is continuing to progress with his treatments. It is truly amazing to see his brain soaking up more information and to see the little changes along the way. But we need to get back home. We need some structure and we need to be together as a family again. We have made a decision to move back home the weekend of July 4th! YAY!!!! The doctors are confident that Dylan will not regress and will progress with speech therapy and school. We are so excited to see what this next year holds for Dylan's growth. We are planning on coming back every 3 months to get follow up EEGs to track Dylan's progress. The clinic has graciously extended their offer for treatment and we are welcome to come back for a "refresher" any time. We could not be any more thankful for everything they have done. They all feel like family now, and we will definitely be sad to leave them.
Dylan is talking more and more every day. He is still pretty feisty and fights me on a lot of issues, but that is to be expected with his growth and I am ok with that. His drawings are continuing to change and new ones are being drawn every day. He REALLY loves singing now. Last month, he only liked one or two songs as his favorites, but now he LOVES THEM ALL. These boys are singing everywhere we go! They especially love singing "Jesus Loves Me"...and very loudly...in public. It's funny to see people's reactions. They are little evangelists! His other new favorite is "Monkey in the Tree"...or that is what he calls it. He gets soooooo into it and laughs hysterically and loves the end when the crocodile snaps the monkey out of the tree. If you see him, ask him to sing it. He will gladly oblige. That and "The Wheels on the Bus", complete with 5 verses. I love these kiddos!! There is definitely never a dull moment with them around.
Thank you for following along and for praying for our family! We love you all!!!
A few weeks ago we drove up to Santa Monica with my friend Nicole....here are a few of our photos from that weekend!! ENJOY!