February 7th 2021

You can alway make a donation

As a chapter Leader for the GBS Foundation I basically have a couple of responsibilities. Besides being a point of contact with people who register as patients or caregivers with the foundation, we have chapter meetings. These are local events in a public place for people in your area to meet each other. Often there a guest speaker who has something of interest to say to people who have GBS or it's variants. Since we've been doing them all on zoom lately I get to go to other people's meetings all over the world. I really enjoy going to meetings. Even before Zoom I did everything I could to get to as many as I could. It didn't occur to me why I was going to all these meetings until a wise person told me," Unicorns like being with other unicorns."

Anyway, a few months ago I hosted my own Zoom meeting and a bunch of people showed up. Some familiar faces showed up. and a handful on New Yorkers new to the GBS "family" Some other chapter leaders from all over the country said hi, too. It was okay. But it occurred to me that a chapter meeting doesn't really have to be regional. It could have a subject that interests people from all over the world. So I decided to have a chapter meeting based on a theme that I can relate to. I decided to set the agenda and talk about something that is common to a lot of people who have had GBS. We all used to live somewhat okay lives until suddenly we had to deal with the effects of peripheral neuropathy. It didn't go away or some of us.... Long-term residuals

Revolutionizing Gaming: The Endless P…
Review - Know Goes Away
Will 2024 Be Another Record-Breaking …
Another Appliance Company Now Files A…
NTT DATA and Beyond ONE forge strateg…

Here is a link to the zoom meeting

Topic: michael ring's Personal Meeting Room. Meeting Recording:

https://us02web.zoom.us/rec/share/yw8pEXaTemcJPwyUV0_hYbv_SYPKo9AOc1p3OfHLdmG2g2hNrlAj229sgnaEva1Q.3_fS9A5Dv7ZEOcmM

And needless to say I'm really grateful for the foundation to have given me the opportunity to do this. And I couldn't have done it without the help from my chapter leader from across the East River and friend, Danawyn and my friend and occupational therapist Jennifer.

People have been asking me to share this so I figured I posted as quickly as I could. Over the next couple of days I'll update the space below with direct links to a lot of the items that were mentioned during the meeting. If you have anything to add that might be helpful to other people, please feel free to put them in the comment boxes in this blog post.

First I'd like to provide a link do an item of computer software that I didn't even mention at the meeting. I'm using it at this very moment. Voice to text. I happen to be using an online program that is free and called SpeechTexter. (so they're not typos. That's what I said.) I actually used to use products from dragon but when I change computers I lost my registration key. They work better in that I was able to say things like strike that to delete the last thing I said. They will also able to learn my Brooklyn accent because I tawk that way

This post first appeared on What You Do Not Know Because You Are Not Me!, please read the originial post: here