2013-10-26 07:06
Reaching four yearsIn a couple of weeks I'll reach the fourth anniversary of being diagnosed with ITP. I am almost adjusted to living with a chronic autoimmune disease. I say alm… Read More
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Portiafaceslife: Itp And Me Blog
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Looking at my options as I learn to live with chronic ITP (immune-mediated thrombocytopenic purpura).
I’ll be considering diet, exercise, alternative remedies, medication side-effects, mood swings, body image, etc. But I promise I won't be gloomy! I‘ll keep my sense of humour, and "always look on the bright side of life!"
2013-02-11 21:49
The infrequency of posts to this blog reflects the fact that, by and large, I have been reasonably well over the past couple of months. It’s true I find the winter cold weather much ha… Read More
2012-08-01 06:32
Earlier this week I received an email from John in Los Angeles. He had been recently diagnosed with ITP, and searching the web for information on his condition, found this blog. He told me… Read More
2012-03-01 02:17
A friend was recently diagnosed with breast cancer for the second time. Although her lump, which was pre-cancerous, was successfully removed, she has to have radiation therapy as a pre… Read More
2011-11-03 06:17
I’m approaching the 2nd anniversary of my diagnosis with ITP. I feel stronger and happier than I did this time last year, but it’s been a strange journey, and along the way there… Read More
2011-05-07 05:54
For the past 6 weeks or so I have been feeling pretty good, despite being “a magnet for colds and flu”, according to my GP, because some of my immune system markers, the immunog… Read More
2011-01-19 06:21
Well, it’s been 2 months since I last reported in this blog, and I have to say it’s been a very confusing (and somewhat depressing) period.My last post was full of energy and op… Read More
2010-11-15 05:00
This month saw me reach my anniversary – 12 months since that strange and frightening day when I was diagnosed with ITP and bundled off to the emergency department of Sydney’s wo… Read More
2010-10-16 04:45
It’s over a month since I last updated this blog, and that’s because I’ve had a shocker of a time. Half the month was taken up by being laid low with a nasty gastric virus… Read More
2010-09-08 07:10
It seems likely that my fluctuating thrombocyte numbers are an indication of an underlying susceptibility to biotoxins (toxins produced by animals, plants or microorganisms). In my case, bl… Read More
2010-09-08 07:09
It’s been over 6 weeks since I last documented my struggle with ITP, or, more optimistically, my experience of life with this autoimmune condition. A lot has been going on over this t… Read More
2010-06-29 01:44
One month on and my platelets have been up and down, and my emotional and physical health with them. I had a high – a record 101 three weeks ago, with ensuing confidence, happiness and… Read More
2010-05-21 01:34
ITP has a new name, or at least a more efficient attempt at nomenclature. New research on the condition was reported in the March edition of the American journal, Hematologist. The very f… Read More
2010-04-17 07:34
Two weeks on and two more blood tests and my platelets are “behaving like the stock exchange” as my doctor put it. Up and down like a yo-yo.Last time I posted, a fortnight ago… Read More
2010-04-05 00:24
This past two weeks or so has been pretty miserable, with my platelet count a week ago down to the frightening figure of 22. My ITP doctor & I had agreed that if it went below 20, she wo… Read More
2010-03-14 05:14
Two more blood tests – now weekly - and it’s clear that as the steroid dose goes down, so alas, do my platelets. The pathologist is now marking my thrombocytopenia as ‘mod… Read More
2010-03-14 05:11
Last week’s blood test was a shocker – my platelet count was down to 33, with the pathologist flagging it as ‘marked thrombocytopenia’. Yikes!!I feared they were fall… Read More
2010-02-25 22:47
Another blood test, another visit to my GP, another set of numbers to crunch and digest. And more patience expected of me – never the world’s most patient person.The bad news is… Read More
2010-02-05 06:52
Well, the numbers in my blood tests go up and down like my belly - which a couple of weeks ago shrank so I could fit into my baggy green summer pants, and this week swelled again, so I look… Read More
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