Humanizing assistance implies involving the child and its environment
Procuring the physical, social and psychological well-being and comprehensive care of the patient who deals with their way of dealing with the disease and their environment has been the objective of the III Conference on Humanization of Hospitals , held at the Gregorio Marañón Hospital, Madrid.
Humanizing hospitals to pay attention not only to the treatment but also to the dimension of the person and the effect that the disease causes in it and in its environment, is a priority with more and more weight in Spanish centers, especially in child care , and following the dictates of the Declaration of the Rights of the Child of the UN of 1969 and the European Charter of Hospitalized Children of 1986. To put in common the different initiatives carried out in the Madrid hospitals of Fuenlabrada, 12 de Octubre, La Paz, Niño Jesús, Gregorio Marañón and San Juan de Dios, of Barcelona, has been the fundamental objective of the III Conference on Humanization of Hospitals, held at the Gregorio Marañón, and which was attended by Javier Fernández-Lasquetty, Health Minister of the Community of Madrid.
In the Marañón, they have had a committee for the humanization of activities since 2008 , formed by a multidisciplinary team of the center, since “we understand that the process of humanization is a process of individualized attention, it is about defining a new paradigm, passing on the idea from hospitals that are friends of children to hospitals that are friends of families, with initiatives that include the child and the environment “, explains Marisa Martínez, medical deputy director of the Maternal and Child Hospital of Marañón.
According to her, it is necessary to incorporate the child and families into decision-making, as well as to establish spaces and supports that help parents and siblings to cope with the situation. Thus, the child is informed, listened to, and is made to participate in his illness, “since he can assent although not consent”. In the same sense, access to new technologies for adolescents and parents can be facilitated as a way of relating to their social environment. In this line, the Marañón does not schedule visiting hours for family members to attend in their free time.
“Children need color and an environment where they can express how they live and feel the disease, they are at least unfit for the process of getting sick.” For example, in the area of hospitalization of oncohematology, tables and chairs have been placed on the terraces of the rooms and large plates with scenes of nature, which offer a comfortable environment, and in the area of external consultations have been painted landscapes, such as the Eiffel Tower and the Statue of Liberty.
All the centers have hospital classrooms , some intercommunicated, for the patient to continue with their schooling and to interact with other children, and the Community of Madrid has a home support program for cases of convalescence over two months.
The School of Neonatal Parents of La Paz teaches parents and siblings to adapt to the new situation and offer the necessary care if the child is premature or born with a problem, and offers them tools to face the feeling of guilt that they may have. At the Gregorio Marañón hospital, a cooking and nutrition workshop is held with the Institute of Nutrition, so that children can learn recipes and the foundations of a healthy diet. Likewise, El Niño Jesus has a gardening workshop and a press sheet called La Tirita, while in San Juan de Dios the Sueños de Trapo program has been created , in which a doll is given to the child at the entrance, and with him they explain what is going to happen to him and he plays to treat him in the same way as a patient.
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