2016-11-12 17:04
I started writing MS Calling exactly a year ago, it seems like it's been so much longer than that, but it really was 12th November 2015. MS Calling: A bit of an IntroductionLooking bac… Read More
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Thanks brain; I don't think you're funny!
2016-10-14 12:35
Tonight's the nightTo see through soundI won't be aloneFeeling blindly aroundBoth Mike and RachWith specs designedWill know what it's likeFor me being blindFunnily enoughThey're pretty nervo… Read More
2016-10-14 12:21
This evening I'm going out. And not just going out to a friend's house or a church meeting, but out out.(Not quite this out out though:https://www.youtube.com/watch?v=0jP_brwVyvc)Into London… Read More
2016-10-06 15:05
Each new dayWhen we're out Others scowlEyes roll aboutBut I can't seeThose who frownOr if they stareIf they're not keenOn my wheelchairAnd to be honestI don't care!It's MY chairIt gets… Read More
2016-06-24 08:23
It is trueIt seems like a nightmareBut you're awakeYes reallyThe lunatics have taken overOur country is in the hands of the mad menAnd I am terrifiedAnxiety souringPeace has flown the nestBe… Read More
2016-06-17 19:37
A friend posted this bucket list on Facebook today and I was at a lose end so decided play along.Been Married xFell in love xGone on a blind date xSkipped school xWatched someone give birth… Read More
2016-06-11 09:56
I am pretty luckyIn our local communityThere are crossings aplentyAnd fairly good accessibilityBut there is one streetCambered towards the roadI have to use it sometimesAnd take it very very… Read More
2016-06-08 15:12
It struck me today, when I was eating on my own, that I can't really see my food any more. I don't mean that my eye sight had suddenly got worse, but just that I noticed it in a new wa… Read More
2016-06-03 17:02
A month ago my folding electric wheelchair arrived from Better Products for Disabled People. I invested my back dated Personal Independence Payment into this purchase after finall… Read More
2016-05-25 16:12
2016-05-17 14:47
This image contains a wordCan you read it?Most of you will say, yes. But many of those who are visually impaired can not read the word. This is because they need to use screen re… Read More
2016-05-14 07:29
Oh the things That people sayThe words I wish Would go awayYou don't look blindHow are your eyesWhat can you seeCan you see the skiesAnd patiently I answer themBut very soon&n&hell…Read More
2016-05-14 06:56
This morning I read a wonderful article on The Mighty: When I Saw the Adventurous Life I Envisioned Before My Illness Slip Away which spoke a great deal to how I can feel at times. &nbs&hell…Read More
2016-05-05 21:28
Spring into springHere new lives beginBuildingBuildingPeace in creationGardening GardeningTherapy with fingersGrowingGrowingPlants and confidencePerfection Read More
2016-05-05 21:21
High anxietyWhen we all arriveWhat will be?ImmediatelyWelcoming friendly facesPut us at easeNo expectationsCome just as we areRelax for the weekBedroomsComfy and brightHome from homeEvery de… Read More
2016-05-05 21:18
Welcomed warmlyHearts, hands and mindsCompletely safeCompletely safeIn Jesus' protectionEveryone valuedEveryone valuedFor individual talentsAs children of GodAs children of GodSupported and… Read More
2016-04-23 05:00
TremorAbout one third of people with multiple sclerosis may have tremor to some degree.ShakingTremblingTremorIt's MSNot parkinsonsAtaxiaDidn't knowThis was a possible symptomBut it is, for m… Read More
2016-04-22 05:00
SpasticitySpasticity is a symptom of multiple sclerosisSpasticitypretty new to mestarted this yearleg lockedcouldn't move it at allterrifiedshoulder stoppedis it a heart attack? nodifferent… Read More
2016-04-21 05:30
RelaxationRegular relaxation is really important to manage the symptoms of MS.Stress is a triggerit makes my MS symptomsso much worseOverworkexhausts me causingpain and fatigueI must restTak… Read More
2016-04-20 05:30
QuestionsQuestions: so many questions. What is causing this symptom?Will it improve or get worse?Will this symptom stay forever?Are there any treatment options?Are there likely to be any tri… Read More
2016-04-19 05:30
Paraparesis Paraparesis is weakness in one or both legsFor yearsMy legs have beenUnreliableFor yearsI've blamed it onMy weightBut I was wrongIt's another symptomof MSParaparesisweakness… Read More
2016-04-18 05:30
Optic neuritisOptic neuritis is a common eye problem in multiple sclerosis.Optic nerveInflammed won't workBrain can't readWithout the brainThe eye doesn't seeBlindnessOptic neuritisfrom MS n… Read More
2016-04-16 13:43
Opened this month is Speccies, a brand new shop on Cross Street in Reading.Speccies is a brand new way to buy prescription glasses and sunglasses. Instead of paying through the nos… Read More
2016-04-16 05:30
Neuropathic painNeuropathic pain (nerve pain) is caused by damage to the nerves in the brain and spinal cord.Pins and needlesup and down my bodyalways on the moveSometimes scarybut usually j… Read More
2016-04-15 09:15
This is a taleTrue one about meAnd my experienceBeing mum with disabilityThis is a storyAbout joined up planningWell, lack of itAnd lack of thinkingRemember IAm blind; and alsoTravel on whee… Read More
2016-04-15 05:30
MRIMagnetic resonance imaging (MRI) is a scanning technique that produces images of slices through the body.Lie on this tableCareful not to moveThis massive tunnelWill see inside your headA… Read More
2016-04-14 05:24
Lhermitte's signLhermitte's sign (pronounced Ler-meets) is a sudden sensation resembling an electric shock that passes down the back of your neck and into your spine and may then radiate out… Read More
2016-04-13 13:20
Kale Kale is a great source of Vitamins A, C, and K.Green and leafyNot my usual tippleBut if it's going to workI'll give it a good goPut it in my smoothieEvery single morningAlong with… Read More
2016-04-12 11:26
Welcome to the #TreasuredMoments link-up.The place to share treasured moments in poems and blog posts.What wonderful Treasured MomentsWe've seen linked this last weekI bet you didn't se… Read More
2016-04-12 05:30
Just Keep Keeping OnMy main MS Mantra.Get upCome what mayI will fight Another dayFind the joyeven for a secondEvery dayhappiness beckonsTake a challengeStretch yourselfDon't limit you l… Read More
2016-04-11 05:30
Immune SystemThe immune system is the body's main defence against infections or other foreign substances.Every dayIn many different waysI feel unwellGo down with a coldI'm brought to my knee… Read More
2016-04-09 06:45
Heat SensitivityMany people with MS find that heat can cause their symptoms to worsen.In the bathMust not be too warmMight pass outAt the spaLovely and warm, but carefulCould keal overIn the… Read More
2016-04-08 05:43
Glands The glands of the body related to the immune system seem to be affected as part of MSfor some of us, especially those who have had glandular fever.MSWhat's the causeAn… Read More
2016-04-07 06:35
FatigueFatigue is one of the most common symptoms of multiple sclerosis. Head too heavyHave to stay lieing downCan't moveLegs like leadDragging myself aroundSo hardArms dead weightsCan barel… Read More
2016-04-06 06:33
Emotional LabilityThis is an excessive emotional response to a minor stimulus.Watching TVSuddenly in tearsAnd recoverReading a bookLaughing off the hookAnd then stopWith friend who's downGo… Read More
2016-04-05 11:44
Welcome to the #TreasuredMoments link-up.The place to share treasured moments in poems and blog posts.What wonderful Treasured MomentsWe've seen linked this last weekI bet you didn't se… Read More
2016-04-05 06:35
DemyelinationThe process of damaging or stripping awaymyelin from an axon is called demyelination.The nerves are bareWhere once they were safeNow they are openIn a risky placeNow those signa… Read More
2016-04-04 05:26
CognitionIs the action or processof acquiring knowledgeand understandingthrough thought,experience and the senses.Cognitive functionThe ability to thinkTo remember factsTo concentrateAr… Read More
2016-04-03 18:46
We went to the zooZoo zooHere's our day for youYou youScooter came tooToo tooWe went to the zooZoo zooNow that irritating song Is stuck in your headHere's what we sawAnd some fun that we had… Read More
2016-04-02 06:14
Bladder ProblemsIt's not prettyIt's not glamorousAnd let's be clearIt's not humorousBut I'm sad to sayIt's common placeFor those of usWith MSThe sudden needWith little warningThe awful riskI… Read More
2016-04-01 05:56
AphasiaAphasia is the medical term for difficulty in finding the right words or forming sentences.There's a wordI know I know itBut can I find it?No!You knowFor that thingTHE thingOver there… Read More
2016-03-29 22:17
Sweet burnRoast butternut squashCaramelised Read More
2016-03-29 22:08
Hugged too tightBreathing really trickyNervous wreckFaulty systemWhere's the reset buttonNerves misfireTo exist or liveWhy should we have to askCruel choiceOne day of stressLeaves me less th… Read More
2016-03-29 21:58
Five minutes isThree hundred secondsCount through pain Read More
2016-03-29 21:51
One hour warmedSoul zings, nerves calmFree therapyRestoring sunBathing with healingMy lucky charmVitamin DHeals, restores, warmsSuch needCome oh sunYour weather heals meI'm helpless Read More
2016-03-29 21:45
Peatland bogNo home for potatoesMS family treeEmerald isleRoots of my familyFeels like homeI think this Branch holds the rootsOf MS Read More
2016-03-29 21:36
Sentinel's truthRapid progression, theyDidn't stand guardThat's how it isLet down by my bodyFeels rubbish Read More
2016-03-29 21:26
Beneath bad accessA culture of exclusionBad for businessPoor access?Shame on you, you'll be namedDon't be vacantRamps, wide spaceNot that tricky reallyHuge improvementThink about allTry a da… Read More
2016-03-29 21:14
Everyone elseWelcomed without barriersNo wheeled accessI wrote this when we were sofa shopping. It never occurred to me that even warehouse size shops full of furniture would exclude those o… Read More
2016-03-29 21:10
Chores never endFibonacci spiralMum at the sinkYou've no ideaHow much I wish I couldBut I can't Read More
2016-03-29 13:58
I know, I knowThere are two wordsIn that titleWhich shouldn't be togetherBut believe meIt's trueI'm not pulling your legDespite all my fearsI've been approvedYes approvedFor full, full, full… Read More
2016-03-29 10:43
Child of mineYou're my entiretyMy meaningThis is linked up at#TreasuredMoments Read More
2016-03-29 10:41
Easter TimeIs Family TimeTogetherHanging OutScoot Walking by the SeaSelfie TakingWind SweptWarmed by the SunshineGorgeousEaster TimeFilled with love and hopePerfectionThis is linked up at#Tr… Read More
2016-03-29 09:33
Welcome to the #TreasuredMoments link-up.The place to share treasured moments in poems and blog posts.What wonderful Treasured MomentsWe've seen linked the last few weeksI bet you didn'… Read More
2016-03-26 07:08
On the wayTo the flat todayWe took a short cutDown a single trackAnd we, got, stuck!No way forwardNo way backWe ..... sat.Mike stressedDidn't like the restWanted to do his bestTo get us on t… Read More
2016-03-21 22:50
Every dayCome what may, I write And TweetThese todayWorld Poetry DayNo less or moreHere to seeIn reverse chronologyTo you from meBlind shall seeIt's not true for meHoly WeekxxxMS Warrio… Read More
2016-03-21 07:26
Today's the dayOf my PiP assessmentThe day they decideIf I'm worthy of paymentFor being disabledAnd in order to do thatThey're going to question meAbout what I am ableTo doAnd their tryingTo… Read More
2016-03-21 07:04
https://www.mstrust.org.uk/a-zIt is with pleasureToday, the 21stTo reveal my themeFor the month of AprilThrough every dayExcept for the SabbathI'll pen a poemAbout MSI'm doing thisBoth as a… Read More
2016-03-20 17:01
This week we have been reading and enjoying two magazines; Amazing and The Week Junior.By we I clearly mean Rachel.By reading I clearly mean Rachel reading and telling me.By enjoying I clear… Read More
2016-03-20 15:53
Yesterday Mike, Rachel and I went on an adventure to London toBilly Elliot The Musical at The Victoria Palace Theatre.We had researched different routes to get there including the cost… Read More
2016-03-18 16:17
Welcome to the #TreasuredMoments link-up.The place to share treasured moments in poems and blog posts.Generate your button code An InLinkz Link-up Read More
2016-03-18 16:16
Earlier this week, following a meeting with me, the lovely young carers worker from the local authority came round and met Rachel. She came and chatted about the things that Rachel doe… Read More
2016-03-18 15:08
Dear RachelIt's meYour mumHappy Non-BirthdayOn your birthdayI couldn't write theseOn your birthdayI was making memoriesTold I shouldBecause who knewWhat was going to beI was that illI never… Read More
2016-03-18 15:08
Yesterday I sat on the sofa with my head in my hands and my heart in my throat listening to the budget 2016. There'd been bad news in the few days before including a huge cut in disabi… Read More
2016-03-13 09:25
Hi thereWe're looking for helpFor our girlShe helps me outEvery single day, inMany waysWe're hopingYou can give her timeAnd some funLooking forwardTo hearing from youThanksBut noThat's not w… Read More
2016-03-13 08:54
I only lost my sight at the end of 2015; seven years after I started blogging. Through all those years I thought I had a good clear layout and that my blogs were accessible; how wrong… Read More
2016-03-09 22:36
It's KismetStupid shaking handI mean Kermit #MSpoetry #haiku #micropoetry Read More
2016-03-09 21:56
Across the oceanExplore new destinationsLife's adventure#writtenriver #haiku #poetry Read More
2016-03-09 21:52
I smile, I lieSmooth waters run shallowTempest beneath#poetheme #micropoetry #haiku #beneath #mswarrior #depression #spoonie Read More
2016-03-09 17:56
Welcome to the #TreasuredMoments link-up.This is the place to share your poems, photos and blog posts which treasure those special moments in life.Today the prompt, if you choose to use… Read More
2016-03-09 15:56
Yesterday was parents eveningThe last of the primary yearsI wasn't sure what the focus would beDidn't know what I wanted to hearBut then, waiting in the corridorSeeing parents earnestly ques… Read More
2016-03-09 09:59
Mother's dayNot a great dayNot for me anywayI miss my mummyWhat she might have beenBut wasn't and still can't beAnd that hurtsWill always hurtA deep wound in my heartAnd that's not allThen t… Read More
2016-03-09 09:40
In February 2015, four months after I lost most of my eye sight,I wrote a poem which flowed from the soul.It made me realise how important it is to treasure the special moments in life.That… Read More
2016-03-03 22:21
White houseIf Trump wins becomesBleak house @emmuk74 Read More
2016-03-03 12:27
the year is the lastthe wardrobe is bareso this world book dayI had nothing to shareI sat down with mumwe sat there, we twoI asked for ideasshe had quite a fewbut all her ideaswere wrong or… Read More
2016-03-03 12:18
Rustling ribbonsNature tumbles and turnsRhythmic gymnasticsRhythmic gymnasticsWalking without a stickMS wobble Read More
2016-03-01 08:03
She's home againFrom last ever cub campEnd of an era!This post is linked up at #pointshootThis is one of many #TreasuredMoments in life. Do you have one you'd like to share? Then link… Read More
2016-02-29 12:54
Eight weeksOn a healthier planDoing OKNo white sugarLots more vegetablesFish, water, fruitEnergy is upBut no changes in painNot yet anywayAnd it's easyNever going back toSweetenersOr dairyTh… Read More
2016-02-27 08:58
Eight yearsIn a blink of an eyeGoneGoneInto preschool happilyGreat memoryGreat memoryReminds me to trustAlwaysAlwaysChanges in our livesTreasureTreasureThis weekend whilstShe's on cub campSh… Read More
2016-02-26 11:32
Blessings everywhereYou just have to look for themEven when blindAdverts can annoy Especially diet onesSucking us inSize 16 is notReally overweightGet perspectiveAnd fashion adsWeird de… Read More
2016-02-26 11:02
I don't know about you, but I'm often forgetting the things I used to know about blogger. Today one of the things I had to relearn was how to pin an important post to the top of my blo… Read More
2016-02-26 10:55
In February 2015, four months after I lost most of my eye sight,I wrote a poem which flowed from the soul.It made me realise how important it is to treasure the special moments in life.That… Read More
2016-02-24 07:50
Cat satOn trampolineLady and TrampLady and TrampThat cat's no ladyFan the flamesFan the flamesWe caught you outCheeky catCheeky catBouncing aroundThen stillThen stillWhen we try to videoCat… Read More
2016-02-23 17:59
RoundedBeating rapidlyCurvaceousCurvaceousWaddling awkwardlyThat's me Read More
2016-02-23 17:31
Sliver of TimeBefore Energy DeclineBody of MineThis was inspired by the prompt by @baffledCan you guess which word was the prompt?Do you take photos or write poems to remind yourself of… Read More
2016-02-23 17:22
Sudden Stormcaught unawaresFrozenFrozenno more steps possibleSudden StormArt by Mary C FarrenkopfDo you take photos or write poems to remind yourself of those special times?Come and link up… Read More
2016-02-23 17:08
Blind and wobblyAlways spilling my loadAll over the placeDo you take photos or write poems to remind yourself of those special times?Come and link up with your #TreasuredMoments Read More
2016-02-23 17:00
AffinityNot forever, that'sInfinityDo you take photos or write poems to remind yourself of those special times?Come and link up with your #TreasuredMoments Read More
2016-02-23 16:28
www.waynesthisandthat.comSalt gardenGrowing without lifeCrystal clearDo you take photos or write poems to remind yourself of those special times?Come and link up with your #TreasuredMoments Read More
2016-02-23 09:25
Treasure every momentEvery little thingEvery sight you seeEvery word you singBecause One dayHopefully Far awayIt will beJust a memoryTo recallAnd re-seeTreasure every beautiful thi… Read More
2016-02-23 08:56
Love means a lot of different things to different people. It might look like hanging up the bathroom towels after you use them, instead of leaving them on the floor. It might look like a spe… Read More
2016-02-23 07:26
Here's my cuppaNot quite what you thought?Healthy startHealthy startFull of vitaminsSets me upSets me upGets me set for the dayThat's my cuppaXXXI haven't really blogged about my dietary cha… Read More
2016-02-22 17:40
This is my treeAlways watching over meReaching my heartReaching my heartWith bird song galoreBlue tits in my tree Read More
2016-02-22 17:25
Black and WhiteKinder to my eyes, it'sMe myself and IMe, myself and IA covenant for everInfinite Vision Read More
2016-02-18 12:17
8am His patience has goneWater!Meow meowCome on, get out of bedGive me water Read More
2016-02-18 12:15
This is our lifeFamily no matter whatCraziness Read More
2016-02-18 12:13
Toy I rememberNow Rachel has one tooCreative fun Read More
2016-02-18 12:11
Only you mumNo matter how ill you areI love youThis is a haiku of a beautiful thing Rachel said to me as she gave me this love heart. I've printed this photo to remind me not to be so… Read More
2016-02-17 12:44
HRH Duchess of Cambridge this morning launched the #youngmindsmatter as guest editor of The Huff Post UK. I was inspired to write haiku poems for over 20 of the articles which were rel… Read More
2016-02-16 18:02
Glass and half milkMix with love until smoothWhich Chocolate?This week the Ronovan Writes Haiku Challenge reached #84 with the words Milk and Smoothhttps://ronovanwrites.wordpress.com/c… Read More
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