2020-09-14 19:01
I haven't written anything in a while. Mostly because I've been keeping myself busy, quite productively I must say.I started a whatsapp group more than a year ago, where I sell items I… Read More
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Our Journey So Far With Our Son With Complex Medical Needs Blog
jacqueslyperfect.blogspot.com
In my blog I discuss very honestly the ups and downs of our life with our son with special needs. Included is our experiences with type 1 diabetes, ehlers danlos syndrome, autism, sleep apnea and common variable immune deficiency.
2020-06-30 14:26
This special needs journey has been entertaining. It has been scary. It has been educational. It has been down right depressing at times. It has been humerous.All of these emotions have been… Read More
2020-05-15 10:30
Trauma is a slippery bastard. It creeps up on you and takes your breath away at the weirdest times.It sneaks into your thoughts when you're lying in bed trying to sleep. Crowding your though… Read More
2020-04-05 13:35
Our isolation journey so far...With the outbreak of this pandemic on the world, I have to admit that it has not really affected me negatively. But I think I am the only one in our family tha… Read More
2020-03-13 08:44
So amidst this Coronavirus madness, we cannot find DGerm or Bioscrub in any pharmacy😢. We have been using this for a long time before this pandemic made people go crazy and buy out s… Read More
2020-03-05 10:23
Sorry guys, for the month of March I'm going to post a lot about alzheimer's as this month marks 2 years since my mom passed away. My mom had a huge impact on my life and on how I choose to… Read More
2020-03-03 14:46
I did it! I got my first tattoo. And it wasn't nearly as bad as I thought it would be.I'm really proud of myself. I have wanted to do this since before my mom passed away, and decided it had… Read More
2020-03-02 10:24
The 11th of March is fast approaching. On 11 March 2018 our lives changed forever.My mom passed after years of battling Alzheimers disease. And it was a battle, not only for her, but for eve… Read More
2020-02-28 06:36
I made a video of what a typical, non-school day looks like for Jacques.Enjoy! Read More
2020-02-24 09:04
This is gonna sound really strange, but sometimes I almost envy people in "normal abusive relationships". They have the luxury of hating their abuser. Of maybe finally getting out of the rel… Read More
2020-02-12 08:22
My last few posts have been on serious topics. I think it's time for some lighter reading.I herewith present:Weird / crazy things we say or do almost daily on our special needs journey. &hell…Read More
2020-02-10 10:08
When does helicopter parenting become something more in special needs parenting?Photo by Alex Kremer from PexelsHelicopter parenting is described as follows (according to Wikipedia) : A heli… Read More
2020-02-07 06:41
Jacques and I have a special connection through music. It is hard to explain. He loves when I play songs for him on the piano. He will sit next to me and then I have to play. He will sit sti… Read More
2020-02-06 09:44
The third angel I had the privilege of knowing has passed away. And my heart breaks for all of the parents of the kids taken away so young.This is a pain I am not yet familiar with, but it i… Read More
2020-02-05 16:17
People can be cruelNot think before they speakBut you just play the foolNot bothered by what they seekPeople can be curiousOr give you funny staresThen you turn real seriousThey're lucky all… Read More
2020-02-05 04:18
Isn't life strange?When I was a child I had a very close relationship with my father. He was my hero, I looked up to him and I have him to thank for my love for music. His passion for classi… Read More
2020-02-04 11:03
I thought I'd do a refresher post to keep all our followers up to date on the obstacles that's been placed on our journey so far.I first have to refer to my mother's diagnosis and her linger… Read More
2020-02-02 16:40
What an emotional day this was!My mommy heart felt sooo many overwhelming emotions, but the greatest emotion was definitely pride.I am so proud of Jacques and the enormous impact he has had… Read More
2020-02-01 09:50
I wanted to title this post, the loneliness of special needs parenting, but halfway through I had to change the title. You will find out why as you read, so hold on to your horses and read a… Read More
2020-01-31 06:22
I was thinking back to the first time we ever heard a diagnosis, and I was trying to relive the feelings and emotions I had at that time. I have come up with seven honest tips. I don't want… Read More
2020-01-30 05:07
Writing - my childhood fantasyI have always had this silly dream of writing a novel. It started in my childhood. I have started a few times but have failed every time. I think the failures h… Read More
2020-01-29 05:06
Hi all.I am issuing myself the challenge of posting something on the blog everyday of February, starting today (the last few days of January included).This coming weekend brings with it a bi… Read More
2020-01-05 16:52
"What do you do for a living?" Innocent enough question. But this question brings up so many mixed feelings. The short answer: I'm a stay at home mom. But my staying home looks a bit differe… Read More
2019-11-22 06:24
Sometimes it's a bit hard to post, especially when you don't have something positive to post about. It's been a rough couple of weeks. I've decided to try to post something positive so here… Read More
2019-11-07 11:54
The keto diet is going well. I have lost about 4kg already, although this is not my aim with the diet, it's still an added bonus. I am in light ketosis at this stage (my blood ketone level i… Read More
2019-11-06 17:01
I was reminded today how challenging our lives were two years ago when we took care of our mom with alzheimers. My facebook memories for today showed a post I placed exactly two years ago. I… Read More
2019-11-03 17:07
We've had a bit of a rough week, that's why I haven't posted in a while. Jacques has had some aggressive episodes the last week and we've been in survival mode.He got hold of a cd holder ful… Read More
2019-10-23 11:17
My son had friends over for a sleep-over birthday party this past weekend. It was a lot of fun and the kids enjoyed themselves, but there were also some less than enjoyable moments. Ruben's… Read More
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