2018-04-04 12:09
I haven’t posted here in nearly a year, but I’m hitting a bad patch and I need to vent. Yesterday was a really bad day. I’ve recently lost my main specialist for autonomic… Read More
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lymepie.blogspot.com
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All about amateur sex life.
2017-10-25 02:44
Some of you know that I’m a competitive runner despite my chronic illness (Lyme and autonomic neuropathy). I often have major issues with sudden hypotension mid-run and several issues… Read More
2017-10-12 17:54
So once again I’ve been MIA on this blog for a long time. Sadly it’s not because I’m better or healed. I returned to write out my anxiety because I’m overwhelmed once… Read More
2016-11-21 04:24
I had a pacemaker follow-up the other day. As I predicted, my ventricular pacing, a measure of how much time I spend in heart block or pausing has doubled again from 13% to 30%. There are da… Read More
2016-11-21 04:22
I've been put through the ringer with doctors since getting sick 3 years ago. I've had doctors tell me there is nothing wrong with me, there's nothing I can do about my symptoms and that I c… Read More
2016-11-21 02:35
So this will likely be a controversial post since I know a huge number of people in both Lyme and dysautonomia communities have been diagnosed with POTS.........POTS stands for postural orth… Read More
2016-11-21 01:23
So I got my first Mediport about 6 months ago. I don't have it for Lyme. I have it due to severe autonomic dysfunction to use for IV saline to support my BP. I have no intrinsic control of h… Read More
2016-09-10 19:33
It's been a really really long time since I've written anything for this blog. Sadly, it's not because I'm feeling any better and have moved on or cured myself from Lyme or autonomic dysfunc… Read More
2015-12-13 12:04
For the past several weeks, my heart has been going wildly out of rhythm for multiple hours per day. I contacted my electrophysiologist about this after flagging the arrhythmia on my implant… Read More
2015-11-20 13:12
Lyme is such a cruel disease. The way it can hit anyone of any race, gender, age. The way some people seem to almost gloat about their ability to bounce back to perfect health with small dos… Read More
2015-11-18 01:26
Today I woke up very symptomatic, like most days. I had immense overall weakness in my limbs, flu-like fatigue and aching, dizziness, muscle weakness and severe nausea from very low blood pr… Read More
2015-11-02 04:49
Yesterday I ended up in the ER again. For many weeks I've been struggling to eat and drink because my BP keeps plummeting causing severe nausea and I vomit almost everything up. Yesterday wa… Read More
2015-10-31 17:15
So I realized that I haven't written a single update for the month of October and now the last day of the month is here. I think my last electrophysiology appointment really got to me emotio… Read More
2015-09-07 12:10
From the time I first got sick 4 years ago, I have nearly always had mild elevations of bilirubin. Bilirubin is a product of the breakdown of red blood cells. When it's elevated, you can dev… Read More
2015-08-19 01:17
There are so many days lately that I just want to give up. Go off all my meds, lie in bed and sleep forever. I'm so frustrated and sick of my symptoms. Having a chronic illness sucks. Both L… Read More
2015-08-02 23:39
So for the past two weeks I've been doing pretty well on Octreotide. I'm extremely grateful to have it and grateful that I have an aggressive electrophysiologist who has put in a lot of effo… Read More
2015-07-30 09:39
In week 3 of Mepron I suddenly developed severe muscle pain like I've never had before in my life. It was affecting my sternum, pacemaker area, arms, legs, wrists, ankles, fingers, toes, etc… Read More
2015-07-26 17:28
Last week I got a call from my electrophysiologist about being able to start a new medication to increase my blood pressure: Octreotide. The drug is generally used for certain types of stoma… Read More
2015-07-15 01:02
Well I made it through my 2nd week of Mepron and Zithromax, but I'm not doing well. I have over-the-top anxiety and insomnia. I haven't slept for more than 2 hours for the past week. I've tr… Read More
2015-07-07 22:57
Okay, this is my third try at Mepron over a time span of nearly 4 years. I took it twice years ago; early on into my Lyme journey. I took it with clindamycin and got pulled off due to liver… Read More
2015-06-15 02:57
So as some of you may have noticed, my blog posts are becoming scarce. Unfortunately that's not because I'm doing any better than I was years ago when this all started. It's because I'm losi… Read More
2015-05-17 07:54
Believe it or not, despite my constantly dropping blood pressure and a heart that does whatever it wants, the doctor that manages those two issues wants me exercising as much as possible. He… Read More
2015-05-09 00:31
This week has been so tough for me. Pretty much every single night I'm waking up with night sweats, nausea, vomiting and undetectably low blood pressure. Every time I eat, the same thing hap… Read More
2015-05-03 22:09
Ugh! The last few days have been rough. I'm almost to the 3rd week of my daily forced running. I haven't skipped a single day. I'm averaging between 4-6 miles of running per day......if you… Read More
2015-04-11 15:40
Today was the day of my consultation and testing with an autonomic neurologist. I've been waiting for this appointment for many months, but not eagerly. I knew not to get my hopes up. I knew… Read More
2015-04-11 14:09
Well I'm going on almost 4 years since my initial infection. The infection that has pretty much ruined my life in all ways: health, career, emotions, personality, financials, etc. My heart o… Read More
2015-04-09 21:02
Wow......something set off one of the worst herxes I've ever had in my life the other day. I had gone to my LLMD who wanted to try some acupuncture points on me. It was the first time I'd ev… Read More
2015-03-30 11:45
1. You look great! You don't look sick. Umm.......thanks. I definitely don't feel great. I've been up since 3:00 a.m. trying to get my BP up to detectable levels and cleaning the vomit… Read More
2015-03-22 13:18
I've been treating my initial Lyme infection for 3.5 years. I've done heavy antibiotics, herbs alone, and herbs plus very light oral antibiotics. I've tested and treated for mold, metals, co… Read More
2015-03-15 21:20
Last week I went away for the first time since I got sick in 2011. I was so nervous. I was flying across the country and staying with people who I know pretty well, but not well enough that… Read More
2015-02-23 01:24
So this hasn't been a good week for me. I had a great day the other day after a glutathione IV. I was able to go running for the first time in weeks. My BP didn't drop. I didn't get snapped… Read More
2015-02-08 22:27
The day is almost here........the day that I've been worried about for months. My first visit with an autonomic neurologist from the same anti-Lyme university hospital that my electrophysiol… Read More
2015-01-04 15:10
`So let me start out saying that I've always kept this blog anonymous. I try not to write about anything going on in my non-Lyme personal life and I never list any names of anybody I'm refer… Read More
2014-10-19 14:08
Rant alert. Over the past month, I've been thinking about how people have started to treat me differently since my heart paused in August (first time it was caught on a monitor), and I got… Read More
2014-06-05 02:02
Severe anxiety, shaking chills, increased heart palpitations, inability to calm my mind and body, emotional instability, dizziness. All part of my A-L herx. It started the night I switched t… Read More
2014-05-24 17:35
So I've been over-the-top frustrated for the past several weeks. I feel very very sick and no matter what I do that never changes. I have been trying everything I have access to over the pas… Read More
2014-02-25 15:43
Okay, so this could be part of the reason that I feel like crap constantly. I thought it was getting low like this from beta blockers, but apparently not. This reading was on Sunday night an… Read More
2014-02-22 12:35
Okay, I'm pretty stressed out. This is the second time this week that my heart has felt completely out of control. I think it's just PVC's, but I don't know how to read EKG's (and I've been… Read More
2013-12-17 10:09
All along since contracting Lyme disease in 2011, I've tried to use Stevia as my sweetener of choice whenever possible. Stevia is a reasonably good choice for people with Lyme because it's l… Read More
2013-10-16 02:53
Well a few days ago I was in a very scary state of depression which only comes from herxing for me. It was really bad and it became the main factor in my decision to back down off the herbs… Read More
2013-10-15 00:40
I am not doing well. My depression and anxiety are severe and I'm having a very bad headache and fever that I can't sleep through. I'm also having a lot of unusual pain in my ribs and lower… Read More
2013-10-10 03:36
I'm not going to say much in this post because I'm still not in a great place emotionally. Last week I was able to get up and attempt a few walks. I was no longer nearly bed-bound like I was… Read More
2013-08-23 21:12
So I was at my doctor's office for a regular thing and I mentioned how my heart has been beating strangely more often than usual along with dizziness, feeling "off" and losing the feeling in… Read More
2013-08-14 20:20
Liver enzymes were one of the only things that ever came back abnormal for me from standard doctors before I even knew about having Lyme or began treating it. When I went on Rifampin last ye… Read More
2013-07-11 01:50
Today I started Japanese Knotweed, Artemisia and Houttuynia. I have taken knotweed and artemisinin before. Houttuynia is completely new. This was not suggested to me by anyone. It's somethin… Read More
2013-06-29 15:42
So I had my CD57 retested a few weeks ago. I do not place a ton of value in this test based on the research that was presented at the ILADS presentation in 2012. Apparently the number can fl… Read More
2013-05-18 19:22
A few days ago I was incredibly stressed for no reason and couldn't calm myself down. I was unbelievably overwhelmed and upset. That level of anxiety has happened before. I remember it clear… Read More
2013-05-18 19:20
I got the results back from my thyroid and hormone testing. The only abnormal results based on the reference range was my sex hormone binding globulin (high) and Free T4 (low). My TSH was 3… Read More
2006-06-07 11:16
For the past many weeks (since I went off herbs and got severely ill) I've been feeling really horrible and scared that this is going to become my new "typical" level. I can barely get out o… Read More
2006-06-07 11:16
The other day I met with a TCM (traditional Chinese medicine) doctor who was recommended to me by a family member and my Lyme doctor. As some of you may recall, I am a VERY skeptical person… Read More
2006-06-07 11:16
So after my great experience at urgent care recently when I desperately needed help to stop vomiting and regain hydration so that I could have avoided fainting 19 times in 6 days, it would b… Read More
2006-06-07 11:16
So I don't distrust all doctors. I had/have some trust for my current LLMD, another ND and shockingly, my former LLMD (because at least he attempted to help and do the right thing even thoug… Read More
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