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2015-08-03 21:15
My mum kisses me, my family dissess me.Society dehumanises me. Despises me. Criticize me.They are fossilized. I do not apologise.I am ridiculed, violated, bullied. Ignored.I am stared at, la… Read More
2012-01-03 21:37
Even if you don't know very much about autism I'm sure you will have seen or heard of a few of these.Please let me know the ones i have missed.1962 - To kill a Mockingbird1963 - A child is w… Read More
2011-06-18 07:21
Abuse on a large scale is not just happening behind closed doors as in the recent exposure at Winterbourne but in the community - on the streets - in public – by the public. Disab… Read More
2011-06-03 18:00
People make assumptions about why I ‘put’ C in a residential home – it’s so hard you poor thing you couldn’t cope or so I could have a life or because I just do… Read More
2011-05-23 07:30
Our senses - a constant stream of information - hearing, sight, touch, smell, and taste being the ones we first think of but there are many others all working together – affecting… Read More
2011-04-26 05:38
Cultural perception of disability has long standing historical influences and has been shaped by fear of the unknown.Ancient Greeks disposed of imperfect babies. The Romans would throw disfi… Read More
2011-04-11 06:13
I don’t know how many pairs of socks C has gone through - hopefully we may have solved this….. =First had to get into C’s world to work out why pulling up his socks e… Read More
2011-03-28 09:04
In today’s fast moving and aspirational society, social care needs to keep up. Its evolving slowly - there’s a cultural shift towards personalization and our expectations ar… Read More
2011-03-11 16:44
C’s head banging has been out of control :(Being pre-verbal does not mean having nothing to say! C has been trying to tell us something.Even with ABC charts – functional analysis… Read More
2011-03-08 21:42
There are many forms of self injurious behaviour (SIB). C has tried lots over the years, biting, scratching, pinching, eye poking, hair pulling to name a few but non have work… Read More
2011-03-05 15:32
C turned 22 recently. C in the same week was taken to Diddlyland by staff.What image does this project to the public - to C? That it’s ok to treat adults as kids?Was there any tho… Read More
2011-02-09 10:24
Day Centres - Systemic injusticeI don’t want to be herded around or trained.With nowhere to use the skills I’ve gained.In an over crowed centre where one size fits allWith your r… Read More
2011-02-05 20:58
Before C was 18 I was always able to give parental consent to things. Now he is an adult – I can’t. It hasn’t been an issue till now. We went to the dentist (hospital denti… Read More
2011-01-27 18:31
C is 22. And only in recent years he has ‘allowed’ me to give him a quick kiss. On his forehead (if he’s in the mood to bend down) or on his nose with my finger. His terms… Read More
2011-01-20 18:59
I went on an Intensive interaction workshopWith Us in a busIntensive – yesInteractive – yesWOW – YES!So basic, so fundamental, so obvious (when you know). Filled me with ex… Read More
2011-01-06 22:01
"Chance Favours the Prepared Mind." Louis Pasteur I recently went to a talk given by Dimensions who described transition from child to adult services similar to falling off a cliff. I would… Read More
2011-01-05 19:46
The Autism Act 2009 was the first ever disability-specific law in England. This Act did two main things.First to put a duty on the Government to produce a strategy for adults with autism, wh… Read More
2010-12-04 09:16
ParentI was recently told by a manager of a residential home (not C’s) that because I have organised a Christmas lunch for the parents of C’s home that there must be a need in me… Read More
2010-11-18 09:26
Autistic with spoons? Autism and spoons? Here’s my attempt at a variation on the spoon theory.We all have spoons. There are no stereotypes for spoons. Everyone’s spoons are diffe… Read More
2010-11-10 17:07
Dear Bendy GirlI recently went to a fascinating talk given by Neil Coyle Director of Policy of the Disability Alliance (DA). Their aim is to break the link between poverty and disability. So… Read More
2010-09-19 20:24
Sleep deprivation has been used in wars and terrorism as a form of torture to force victims to disclose information. Sleep is a stronger basic need than food and water. Simply, the human bod… Read More
2010-08-23 05:24
I remember very well the post DJ Kirkby wrote a couple of years ago when Denyse was diagnosed (at 40 years young) and ‘came out Asperger’. Denyse said ‘ I am still the… Read More
2010-07-29 20:29
There are many myths and theories surrounding autism.Autism has been around longer that it has had a name and much longer than many of the theories below were even invented.Here's a light he… Read More
2010-07-14 19:42
C is doing sooo well. He is really enjoying night clubs and has gone from holding 1 of my hands to a 2 handed stim  dance from behind!Since being in his new home together we have s… Read More
2010-06-21 20:17
A general anaesthetic is a worrying time for any parent, but even more so when you can’t explain to your child what’s happening and they have severe self injurious behaviour and… Read More
2010-05-18 16:11
C’s best interest meeting to determine his ability to consent for a GA didn’t go as I expected. It was straight forward and very positive!! Everyone easily agreed that C does not… Read More
2010-03-04 18:32
Apparently! After listening to high pitched oooooo’s and eeeee’s for 21 years I didn’t hear C's first words!! ‘Allegedly’ 1 member of staff heard C say… Read More
2010-01-11 21:29
"If I could snap my fingers and become non autistic, I would not - because then I wouldn't be me. Autism is part of who I am." Temple Grandin And that is how I see C. Autism is part of who h… Read More
Night To Remember
2008-12-20 08:42
The music throbbed.The lights flashedThe dance floor was heaving.I scanned the room and then I saw him.The most handsome man there.Our eyes met only briefly but his radiant smile remained as… Read More
2008-03-06 07:26
Casdoks log supplementalWith advancements in technology the inspirations on Star Trek may one day become reality. And just think what difference it could make to our childrenHypo Spray, a ne… Read More
2008-03-05 07:48
People were more accepting. What message would you like to send out to the universe? I saw this meme at Odats and Late Bloomer Boomer and loved the idea.Message In A Bottle Meme1. Compose a… Read More
2008-02-08 07:43
I recenlty saw this at Ouch about Disability awareness in Albert Square.And just wondered what you thought about Soaps portrail of disabilities. Here are a few reminders;In Neighbours’… Read More
2008-02-07 07:07
Inthemud reminded me yesterday of a man who made his flat into a Star Trek home. You can see more photos here. Whilst browsing i also found these other houses. I wonder what they say about t… Read More
2008-02-06 08:05
Happy Birthday Lego!Lego was 50 years old last month!I dont live far from Legoland, i certainly recomend it (bit pricey though!)There are amazing things that people have biult out of lego.Ar… Read More
2008-01-08 07:49
I recently watched a couple of the X-Men films again. And thought I would write a post about it, but whilst googling I see its been done before. Two interesting posts about the X-Men movies… Read More
2007-12-28 11:46
I don’t want to be treated like a child.I want respect.I don’t want to be ‘trained’.I want the opportunity to grow.I don’t want to fester in a local day service… Read More
2007-12-09 09:58
It takes a village to raise a child. I had never heard of this proverb before Suzy sent to me. And thinking about it i think it is so true.This ancient African proverb teaches eternal truth… Read More
2007-12-02 09:00
Read the color of the words below (not the actual words), try to do it as fast as you can. Is it difficult?How many Fs can you see?Finished files are the resultof years of scientific studyco… Read More
2007-11-25 08:52
Please take care if epilepticThey seem to move yet they are staticAngry face on the left and happy on the right. Step back away from the screen and see what happens! And here's one last one… Read More
2007-11-18 08:37
I have no idea how this works,I have never been that good at optical illusions.But the friend who sent me this said if you stare at it long enough, you should be able to see the ocean… Read More
Does TV Cause Autism?
2007-10-10 17:44
Aunt of Shrek phoned last night to ask if it was ok to let my young nephew watch more TV whilst he wasn’t very well, as she had heard too much TV for young children wasn’t very g… Read More
2007-09-14 14:43
I have a disabled parking bay out side my house. Every now and again people with out blue badges use it.Today someone has left their car in my bay, and its still there.Any suggestions for ru… Read More
2007-09-10 12:59
When i tell people C is autistic, the usual response is 'hes good at drawing then'!!! Or they think of the Rainman, or the MMR! C is also low functioning. But i am now confused about using t… Read More
2006-06-07 11:16
Drowning in a tidal wave. Rapidly repeatedly smashing his head hard onto a solid object trying to cause more pain to block out the pain he is already in - giving himself something to cling o… Read More

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