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2019-08-13 17:50
47. Ballooning I changed into my flying suit and stepped into the gondola. I’d never done anything like this before, but the Professor said there was nothing to it. “There’… Read More
2019-05-27 17:54
As long as I can remember I’ve wanted to write Crayons in old tobacco cans Read More
2019-05-19 17:02
I’m going to revive One Life, whatever that ends up meaning. Here’s to taking the opportunity to begin again. from “The More Loving One” by W.H. Auden How should we l… Read More
2018-11-12 20:49
If you’re still here, and wondering what ever became of me, I’ve moved over entirely to Captured Light. Take a look, drop a comment, subscribe if you dare. I’ll leave the p… Read More
2018-09-29 16:18
I see the image of Jeff Flake being accosted in the elevator and it makes me think of the tsunami that’s coming. A tsunami where the tide goes out so far everybody’s like, &ldquo&hell…Read More
490
2018-09-13 13:26
Somewhere in Boston Right after photo school, I worked for a time as a commercial photographer for a company in transition between analog and digital. We produced slides for corporate prese… Read More
2018-09-11 12:44
From the boardwalk along Lake Geneva in Montreux. I don’t seem to take the standard tourist photos when I travel. Then I get home and wish I had. The boardwalk was a crazy open-air ma… Read More
2018-09-09 19:13
Over Lake Geneva, Montreux, Switzerland 2012 A once in lifetime (or twice if my ship comes in) trip. Beautiful location, heroic support team, amazing music, brilliantly accessible venue. N… Read More
2018-09-05 20:06
I fell down the other day. Not so much fell as slid (gracefully, of course) from the bed to the floor, muttering through gritted teeth, “no, no, no,” all the way down. Once there… Read More
2018-08-19 20:25
Brunswick, MaineI’m venturing back into my archive, admiring older images. An inspiration for myself, and the pleasure of sharing older images. This is a scan of an actual print Read More
2018-08-18 18:22
Portland, MainePrints always available Read More
Sunbathing, And Another Change
2018-07-25 12:10
When I was in photography school, an educational foray that didn’t hurt me none, my first teacher, Fred Sway, made the comment that the term “shooting,” didn’t reall… Read More
2018-06-28 19:03
The only thing worse than getting a song stuck in your head is getting a song you don’t like stuck in your head. A song you have not listened to since back in The Day, for a very good… Read More
Forward, Into The Past!
2018-05-10 18:36
“Children and hot fluid should be kept apart.” Sage advice from the side of my French-press coffee brewer. A new reader of One Life (that brings my total readership to thre… Read More
2018-05-06 20:25
If you want to hug the guy in the wheelchair, come on down here. Don’t be shy. Come down where I can reach you. Take a knee or pull up a chair, and let’s do this thing. The A-fra… Read More
2018-04-27 04:54
Is there any quantitative difference between the Hindu mantra “tumi baj re,” and the more secular Town Fair Tire jungle? Both occupy space in my frontal lobe, and both come as ea… Read More
My Clown Car
2018-01-24 15:49
I’ve been working on this post for a month. The central image equates my wheelchair to a Shriner’s clown car, but the narrative has been eluding me. In each attempt and revision… Read More
One Blog To Rule Them
2018-01-18 19:42
My wife used to have a lapel pin with this sentiment stuck in the headliner of her car.  Floating around out there amid the billion or so blogs and vlogs and gogs and magogs and w… Read More
2017-11-30 14:35
I used to have a book called, “What Do You Say When You Talk To Yourself?” It was, as you might imagine, essentially an admonition to speak to oneself in positive reinforcing lan… Read More
2017-11-29 20:48
Found on a scrap of yellow teletype paper in a box of ancient writings.I don’t remember who it’s written to. I have a picture in my wallet/not of you I’ve forgotten what yo… Read More
2017-11-05 17:13
“According to Hindu mythology, the universe was created with a sound: “om.” It’s a syllable that contains within it everything that ever was and everything ever will… Read More
10/17/17
2017-10-17 14:57
Some mornings when I wake up, and I find it really hard to get out of bed. Some mornings, I wake up and nothing is cramping or numb or tingling. I’m not feeling those random bee stings… Read More
2017-09-20 15:02
Every now and then I am reminded of this little poem. I’m not sure I understand it fully, but I sense some deeper, maybe liberating, wisdom in these words. I’ve had the little sc… Read More
New Normal
2017-08-12 17:27
My new normal is always today. Yesterday is so yesterday, and tomorrow never knows. Chronic illness encourages mindfullness.   Read More
2017-08-04 19:17
Something new I’m trying. Gunshots scare my cat. He curls up beneath my chair. Mice go unnoticed Read More
Tombo
2017-07-05 12:44
I’ve lived with a lot of cats. Ever since I was a kid, there has always been a cat or two around the house. I don’t remember all of their names, but a house is more of a home whe… Read More
Smoothie
2017-07-03 17:27
This little machine, the Black and Decker Fusion Personal Blender, is my favorite household appliance. I won’t go so far as to say it’s changed my life, but it’s come close… Read More
2017-06-27 18:59
One night back in early December, I fell out of bed. Well, more like slid out. I was wrestling with the flu at the time. My fellow MSers will know what that means. (For you muggles, any kind… Read More
2017-06-26 15:34
Welcome to One Life, Mark 2. My goal is to post entries every day – not necessarily about multiple sclerosis or other health related issues, but thoughts, images, quotes, resources, ha… Read More
My Kryptonite
2017-05-20 15:01
Oh, yeah. Now I remember. Maybe it’s a feature of my MS brain (what’s left of it), or simply a human-evolution survival mechanism, or maybe it’s just me, but when the weath… Read More
Field Trip: The Pot Store, Pt. 2
2017-05-16 19:08
This ain’t your dad’s marijuana. At least it certainly ain’t my dad’s marijuana. This stuff I got is far more potent than anything I’ve ever had before. It does… Read More
Field Trip: The Pot Store, Part 1
2017-05-10 19:04
If you had told me back in the day I would walk into a nice clean store on Main Street, and legally buy marijuana, I would’ve told you that you’d been smoking too much of your ow… Read More
2017-02-14 14:00
You’ll never feel ill enough. There will always be a little voice in the back of your head whispering that you’re fine, really, you’d be okay if you only tried harder. That… Read More
2017-01-04 14:43
How nice to wake up in the morning (my favorite way to start the day) to find that my mind wasn’t racing off in anxiety driven confusion, my legs weren’t cramping, my arms weren… Read More
2017-01-02 19:26
I’m not a New Year’s resolution kind of guy. As with most people, there are far too many broken resolutions littering my past. But I came across an interesting idea recently, whi… Read More
I Can’t.
2016-09-07 15:49
I was all set to write  post about finally embracing, “I can’t.” I have tried to remind myself that of course I can. It might take me 4 times as long, and it might wre… Read More
2016-09-06 19:01
Three Moments of an Explosion: Stories by China Miéville My rating: 5 of 5 stars His novels are hard to classify – part steampunk, part fantasy, a little science fiction. He cr… Read More
2016-08-01 15:11
I ‘ve been out and about with my bad motor scooter – taking the short bus to Freeport (home to Maine’s #2 tourist destination, L.L. Bean, and a very accessible little down… Read More
Cruisin’!
2016-07-18 13:52
It’s cruise control for your wheelchair. After waiting a few months for Medicare approval and delivery, a week or so of weather delays and a few false starts (due to user error &ndash&hell…Read More
2016-07-05 14:28
I saw a t-shirt once that said, “I do the MS walk every day,” sarcastically referring to the well-known MS Society fund raiser. For my MS walk – or more precisely my MS shu… Read More
I’m Not The MS Guy
2016-06-27 14:58
Many years ago, my daughter had a heart transplant – a sudden and at times terrifying journey. It all worked out remarkably well, better than we dared hope. After her surgery, I though… Read More
Does Diversity Include Disability?
2016-06-13 14:35
The LA Times recently published “A list of 100 people in Hollywood who could help fix the Academy’s diversity problem.”  The list is replete with people of all co… Read More
2016-06-05 13:17
Someone posted a video on Facebook this morning of some ripped athlete guy showing off, doing push ups and pull-ups and weight lifting and such, with his wheelchair strapped to his legless b… Read More
Thinking Visually
2016-06-01 17:52
Pause in your busy day to visit the peaceful paths of Blue Buddha Mornings. In lieu of a mind that doesn’t want to put words together to form coherent thoughts, I retreat to my studio… Read More
2016-05-18 18:00
Hugging someone in a wheelchair is not all that different from hugging someone…not in a wheelchair. It doesn’t have to be like in the picture (the only image The Google was able… Read More
No Mind
2016-05-15 19:17
I feel like I have plenty to say lately – I have a growing list of prompts and drafts and notes to myself, lots of great topics – but when I sit to begin putting actual words tog… Read More
2016-04-19 16:30
I wrote this after being rudely awoken, far earlier than I would have liked, by my near constant companion Jimmy.) How about this. You wake up in the morning feeling like someone has been po… Read More
Second Level Stress
2016-04-15 15:19
Is there no end to the parade (or is merry-go-round a better image?) of MS symptoms to identify and cope with? As if the pain of spasticity, general muscle weakness, lassitude, and cognitive… Read More
Another Day, Another Symptom
2016-04-15 15:19
Is there no end to the parade (or is merry-go-round a better image?) of MS symptoms to identify and cope with? As if the pain of spasticity, general muscle weakness, lassitude, and cognitive… Read More
2016-04-11 14:00
While many people my age – I am hopeful that 57 can still be considered mid-life- might be lusting after sports cars, I find I am drooling over cool and sporty and high-tech, and, ulti… Read More
2016-04-01 20:16
A brilliant essay on the true nature of disability. Recommended reading. Why Are Wheelchairs More Stigmatized Than Glasses? (Reposted without permission from the excellent Nautilus.us) Read More
2016-04-01 17:44
I last saw Mercury twenty nights ago. It was raining. It was always raining, but I never noticed. It was a Wednesday, though it wasn’t always Wednesday. Mercury and I were just walking… Read More
It’s The Little Things
2016-03-26 15:05
Problem: when you spend your days in a wheelchair, how do you carry your wallet, cell phone, keys, etc. Solution: A hoodie, with kangaroo pouch pocket. Hip. And let’s face it, we… Read More
Claire
2016-03-23 19:52
She wore a fedora, crisp and new, in dove gray felt. A thin black silk hat band sprouted a small blue jay feather, electric against the gray felt. It was snowing lightly and the fl… Read More
2016-03-18 19:31
There are too many false starts and rough drafts piled up on my desk. I sit down with a great idea that seems fully formed in my noggin, only to find when I sit down to write it, after a few… Read More
2016-02-21 14:20
Horseshoe Crab shellSo, I had this baclofen pump thing (I still haven’t named it yet) installed, or implanted, or inserted, or shoved rudely in or whatever, on December first, and I&rs&hell…Read More
2016-02-10 17:51
The temperature outside is in the teens or single digits. It’s snowing and windy. Baby, it’s cold outside. But I don’t live outside. I live in a modern house. With insulat… Read More
2016-02-04 19:38
Maybe you, like me, get an envelope full of paper every month with this printed on it: I have a growing file folder stuffed full of these. There probably is no need to keep them, beyond my… Read More
2016-02-02 20:33
How do you make it count, when you say “thank you,” over and over? There are a lot of people who help me get through my day. Some pass through once, like the stranger who pushed… Read More
2016-01-26 22:29
So much for posting more frequently. So much for best laid plans. Anyway. I came across this tweet from @jessokfine: “The scariest thing about adulthood is when you realize that d… Read More
2016-01-12 16:25
The Littles #11I got my eyes checked recently for the first time in several years. While my vision seemed fine, (the prescription is virtually unchanged) the glasses I’ve been wearing… Read More
2016-01-10 15:07
The Littles #9I put my name on a list somewhere that supposedly will alert me to upcoming medication and therapy test trials that I might qualify for. So far, I don’t think I’ve… Read More

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