2018-10-07 14:41
My Rituximab experience After a poor response to Octogam, my Neurologist felt the next step in my treatment plan for Myasthenia Gravis was Rituximab. This is also known as MabThera or R… Read More
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Snowflakes And Spoons Blog
snowflakesandspoons.blogspot.com
Autoimmune health blog, written from a professional & personal view. Myasthenia Gravis Warrior. Tips for work and life. Clean eating ideas & meals
2018-06-02 11:08
I had just completed what felt like a mini-marathon session of changing, feeding and burping my son. Both exhausted I was only too grateful when he was finally asleep on my ch… Read More
2018-04-08 15:35
Officially a Mom! On the 28th November 2017 my beautiful son, Levi was born. I entered this new territory with brave anticipation. As a first-time mom, I knew I would face unknown challenges… Read More
2018-02-13 09:44
Solving Toileting needs at homeIt is one of our basic needs. When it becomes a difficult or impossible task it can play havoc with your independence, privacy and self-esteem. Here are… Read More
2017-11-21 06:38
I can not believe how time has flown by since we first found out we were expecting. At times it still feels like a foreign concept as we await the arrival of our little boy.For me, the 3rd t… Read More
2017-09-25 12:54
The second trimester is typically said to be the best time of your pregnancy. For me and my growing belly, I have to agree. With nausea settling and my bump actually starting to be visible… Read More
2017-08-14 10:56
Shower hour!.As evening approaches so can the fearful thoughts: 'Do I have enough energy to shower, without putting myself in danger?' 'Can I do it myself or do I once again need to ask for… Read More
2017-06-07 12:37
1) Can you tell us a bit about Bailey?Bailey is now 6 years old (born 7 March 2011). She is a Saint Bernard. She is very sweet-natured, very protective and a very sensitive… Read More
2017-05-29 15:21
I was late but not certain. I crept out of bed early and found the pregnancy test I had bought the day before. So many times before I had taken this test and seen a negative result, but this… Read More
2017-05-09 08:29
Myasthenia Gravis and PregnancyIt took us 8 years to get to the point where we could confidently decide to have a baby. Before this, MG had made my health a bit of a rollercoaster ride. From… Read More
2017-04-24 13:23
When I was younger, my parents owned a small sailing boat. We spent many relaxing days sailing on both the Vaal and Hartebeespoort dam. My Dad was our Captain, My Mom, deck hand and myself a… Read More
2017-03-28 18:02
When diagnosed with Myasthenia Gravis, your neurologist will start to search for the best treatment for you. One of the more drastic treatment approaches you may be faced with is a thymectom… Read More
2017-03-16 08:09
The finer things in lifeMany tasks that we need to do involve intricate movements of our fingers. Our fingers are controlled by 34 muscles originating in our forearms and palms. These muscle… Read More
2017-02-24 08:40
February 28th is world Rare Disease Day!When I was diagnosed I didn't know MG was classified as a rare disease. Here are some answers I found to the questions I had about rare diseases from… Read More
2017-02-16 08:13
Have you ever felt like your hiding from the world or that nobody understands what you are going through? It may be because you are wearing a mask. Putting on a mask is an instinctual&n&hell…Read More
2017-02-08 12:30
Seeing double? Visual accommodations for MG warriors Myasthenia Gravis affects the muscles around the eyes. This can lead to double vision (diplopia), drooping eyelids (ptosis), dry eye… Read More
2017-01-19 13:09
Exercise: a necessity not a luxury.If I saw this post a year ago, I would never have clicked on it. I was always tired and felt like a barely made it through the day. When people traditional… Read More
2017-01-06 10:17
Banana BreadIt's that time of the year where many are jumping on the health bandwagon, thanks to new year resolutions. It's likely that there are a few bananas are starting to see their last… Read More
2016-12-31 15:23
2016: From Wheelchair to first placeThis year has been one of miracles and hard work. In January 2016 I went on a family holiday to Dullstroom. I was so physically weak, my husband… Read More
2016-12-20 10:55
I love Christmas time. All the festive gatherings, carols, putting up the Christmas tree with its twinkling lights and the wonder of our Saviors birth. One of the traditions when I grew up a… Read More
2016-12-06 08:27
One of my pet peeves is when I hear “Your chronic illness is caused by your negative emotions”This implies that:1) If you can change your emotions you will recover2)… Read More
2016-11-25 08:09
My experiences with Cyclosporin 2016At the end of 2015 I reached my lowest point with my battle with MG thus far. I agreed to my Neurologists recommendation that I start a new immunueosupres… Read More
2016-11-09 09:17
Mestinon: Storage and Shelf-lifeMestinon (pyridostigmine) is a lifeline for Myasthenia Gravis Warriors such as myself. I rely on it to keep my muscles functioning and take it every 4 h… Read More
2016-10-18 10:29
My favorite fluffy chocolate cake!After many Drs visit, decisions and future plans, I needed a break. When starting a clean eating diet the one thing I missed the most was a fluffy piec… Read More
2016-10-05 09:52
Occupational therapy strives to use a holistic treatment approach to improve a person's day to day functioning. Balancing life and engaging in work, leisure and personal management by teachi… Read More
2016-09-20 13:59
Adaptive Reading Strategies I recently came down with the flu. After a few days of sleep, social media and TV I was frustrated and bored. I used to love to read. To hold a book in… Read More
2016-09-11 07:11
Connect with me on Facebook : https://m.facebook.com/snowflakesandspoons/I'm no longer a slave to fear…How do I go from singing this song on Sunday to actually believing and livi… Read More
2016-08-31 13:29
Hidden Vegan Gems in Cape TownI love discovering new restaurants, especially when I can order anything off the menu!Here are the top three places I found on my latest trip to Cape Town.Nomad… Read More
2016-08-18 10:29
Why is work important?As occupational therapists, we regard individuals as occupational beings that benefit from active engagement in meaningful occupation 1. A meaningful occupation do… Read More
2016-08-10 15:25
Therapeutic Journaling Need a confidential, non-judge mental support system? Don't have a friend to call or a shoulder to cry on? Feel like you need an emotional detox? Why not try journalin… Read More
2016-08-06 18:22
Want to connect with Snowflakes and Spoons on Facebook? Click hereWe all have our limits. When I got married, one of the things I found the most difficult to get used to was sleeping next to… Read More
2016-07-26 14:39
A sisterly love languageThis month's blog posts seem to be following the theme of family. While I was down in Cape Town on holiday, my sister gave me this piece which she had originally… Read More
2016-07-14 09:05
Married to MGThis month I will be married for seven years and seven months!It still seems like yesterday when I walked down the aisle towards you, my husband to be. Before we got marri… Read More
2016-06-30 14:26
The Risks and Benefits of AwarenessJune has been Myasthenia Gravis Awareness Month. I have experienced the privilege of writing my own posts and memes. I have also been featured in one guest… Read More
2016-06-15 13:51
Walk a mile in a pair of MG shoesMyasthenia gravis is a chronic neurological autoimmune disease with no current cure.It is listed as a rare disease. Through advocacy and awareness, we strive… Read More
2016-06-03 17:00
A spoon saver update.With the chilly weather approaching in South Africa, I wanted to share some of my best spoons savers for winter. I often struggle to regulate my temperate. This is due p… Read More
2016-05-31 14:46
How Snowflakes are formed Myasthenia Gravis (MG) is a chronic autoimmune neurological disease. (1) What a mouthful!It has a world prevalence of between 25 and 142 per million (2)… Read More
2016-05-18 16:49
Help I'm growing a moustache!And the other wonders of medication side effects.The handful of drugs I take daily cause me both joy and pain. My success that can be seen externally is often co… Read More
2016-05-05 17:32
Colouring in: Therapeutic tool, soul food or nonsense?I have fond memories of sitting with my Aunty Karen at Grandma’s house and colouring in. I used to be amazed how she could turn a… Read More
2016-04-28 15:18
Snowflakes and spoons: Mindfulness Challange Read More
2016-04-28 14:37
I really enjoy watching TED talks. I find that they are a great way to gain a new perspective within 10min. I recently watched a TED talk by Benedictine monk, David Steindl-Rast, on the topi… Read More
2016-04-23 05:33
And so it begins...Who am I? I am creative, purpose driven, loving and perserverent. I have two beautiful miniature schnauzers, an amazing husband and I'm a child of God.&nb&hell…Read More
2016-04-21 07:14
5 Top reasons to visit Leafy Greens today!In my search for healthy meals I discovered one of my new favourite cafés; Leafy Greens. Why do I love it so much? … Read More
2016-04-17 05:50
And so it begins...Who am I? I am creative, purpose driven, loving and perserverent. I have two beautiful miniature schnauzers, an amazing husband and I'm a child of God.&nb&hell…Read More
2016-04-14 15:47
Sticks and stones will break my bones, but words will never harm meThen why do I tend to remember the hurtful, insensitive comment so much clearer than the positive motivating ones? Why is f… Read More
2016-04-07 16:54
Speaking your mind! *In South Africa to dis something is to show disrespectApproximately 100 muscles of the chest, neck, jaw, tongue and lips need to work in a synchronized manner in or… Read More
2016-03-31 13:03
A Tuff Pill To Swallow Please note that this post has been split into swallowing and speech difficulties in order to allow for easy reading. Post 1: Learning how to swallow in times of… Read More
2016-03-24 16:40
To follow this blog on Facebook, like the page!https://www.facebook.com/snowflakesandspoons/The Sacrifice behind Passion My friend Lani SO LOVES running that she is preparing to run the… Read More
2016-03-20 06:22
The Pudding ShopWith an artsy feel, this restaurant was my sister-in-law's pick for our our latest traveling spoon adventure. After parking in the street, we found The Pudding Shop tucked be… Read More
2016-03-14 05:57
To follow this blog on Facebook: https://www.facebook.com/snowflakesandspoons/ I got spasms, they’re multiplyingfrom my foot up my leg!And the pain it’s supplying...It'… Read More
2016-03-13 14:24
To follow this blog on Facebook: https://www.facebook.com/snowflakesandspoons/ Reality TV vs. staying connectedI love watching reality TV. From the adventures of the Amazing… Read More
2016-02-28 16:38
And so it begins...Who am I? I am creative, purpose driven, loving and perserverent. I have two beautiful miniature schnauzers, an amazing husband and I'm a child of God.&nb&hell…Read More
2016-02-25 16:07
Worshipping when you can't raise your hands or sing out loudI have grown up in the church and have a love for praise and worship. One of my earliest memories is from a Sunday School concert… Read More
2016-02-19 04:46
Grove Green Cafe To help prevent flares, I strive to eat healthy. I eat 'clean', non-processed food. My diet is gluten free, dairy free and sugar free. I also limit eating nuts as my st… Read More
2016-02-11 17:22
The Spoon Theory and real life Basic theoryThe spoon theory was developed by Christine Miserandino. (1) Spoons are used as a metaphor to describe the units of energy available for people li… Read More
2016-02-08 06:00
How Snowflakes are formed Myasthenia Gravis (MG) is a chronic autoimmune neurological disease. (1) What a mouthful!It has a world prevalence of between 25 and 142 per million &hell…Read More
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