Just wanted to show you guys a few thing I got in the mail today and yesterday. I've been waiting impatiently for my shirt and necklace for a little while now. My shirt took about four-ish days to get here and my necklace took three.
I love the necklace to me it says that I will always have a spoon. No matter how tired I am and how much I hurt, that I will find a way to keep going.
And I hope when I wear my EDS Awareness shirt outside that people will ask me what it means. I want to educate people about my illness. If I educate someone it could lead to them getting a diagnosis or someone else getting a diagnosis. I would wear a sign on me all the time if it helped me educate people more. I know how long it takes to get a diagnosis and how hard it is, I don't want people to essentially suffer because no one knows what EDS is. Speak up, if you see someone with an EDS shirt or any other kind of shirt that is showing awareness for an illness ask them what it is. If you're polite I can almost guarantee that they will give you at least a little bit of information. My goal is to help and inform people.
I got my necklace from this Etsy shop: https://www.etsy.com/listing/200514471/live-one-spoon-at-a-time-spoonie?ref=shop_home_active_18
I got my shirt from Amazon: http://www.amazon.com/Ehlers-Danlos-Syndrome-Support-T-shirt/dp/B016ITTHMI/ref=sr_1_8?s=apparel&ie=UTF8&qid=1455215026&sr=1-8&nodeID=7141123011&keywords=ehlers+danlos+syndrome