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Waiting With Fibromyalgia

Do you like to wait for things? Are you patient enough that having to wait doesn’t really bother you, or do you get frustrated when you have to wait, even a short time?

Waiting

I was thinking recently about all the Waiting my illnesses have caused me to do. For starters, I wait to feel less pain in my day. I wake up in the morning stiff and sore and sometimes I have to wait to get out of bed because I’m in too much pain.

I take my medications, and then I have to wait for them to kick in. There’s never instant relief, no matter how I long for it. Once the pain pills have started to work their magic, I’m able to start my day. At this point, I’m usually starving because I had to wait to eat.

The whole day goes like this. I wait to get pain relief, I wait until I feel hungry, I wait to take a bath until my husband is home, I wait to do any type of work or hobby until I have some energy. I wait to feel happy. I wait for my husband to come home from work so I have someone to talk with. I wait for the phone to ring from friends who’ve forgotten me.

I don’t mean to sound like a pity party, I’m just sharing the realities of my life. I can’t get out and about to make new friends and with Covid-19 in our lives, it would be impossible to do even if I was able to get out of the house. So, I wait for a miracle to happen, for my pain and fatigue to disappear.

Photo by Felipe Cespedes from Pexels

Learning

What have I learned with all the waiting? Patience for one thing. I know that things don’t just happen overnight and that all good things take time. I know that I’ll always live with pain, but I’m learning how to manage it as best I can, with the various tools at my disposal.

I use medications, massage, deep breathing, guided meditations and more to manage my days. Sometimes I can distract myself with a good book or a movie. Sometimes a treasured hobby can keep my mind occupied.

Sometimes I write….this blog, my poetry, a letter to myself. Getting words onto paper holds a special place in my heart and I find it healing to go back and read what I wrote during stressful times.

Telling

Telling someone about what I’m going through can be very helpful to get me through the day. Often I’ll touch base with my dearest friend Charlotte and just share what’s on my heart. We’ve been friends for 20 years now and she knows me so well.

She asks me the right questions and probes my answers to get to the heart of things. I love how she listens and offers words of wisdom. It makes the waiting easier.

I’ve also been involved in Pain Management groups before and I find them so helpful, because it’s people just like me going through the same situations that I do. They get me…they know what the waiting is like.

Photo by Daria Shevtsova from Pexels

Volunteering

I am an active volunteer and sit on several various committees that help to make real change in how Health Care is delivered. One is a Physician Improvement Measurement Group where we survey Doctors on how they can improve their practices.

Having spent much time in Emergency Departments over the years, I also volunteer with the BC Emergency Medicine Network. I sit on the Executive Committee and on the Clinical Resources Committee where we are currently updating all the information sheets that are handed out to you when you are discharged from the Emergency Department. It’s a big project but so worthwhile.

Other volunteer work includes sitting on the planning committee for a new Health Care Centre in my hometown of Langford, BC. This HCC will help provide medical care to the many people who don’t currently have a family doctor.

Conclusion

Do you find yourself in the same position as I do with waiting? Are you always waiting for the next thing to happen. I’m learning how to ground myself in the moment and not let waiting take over my life. It’s a minute by minute process and I’m constantly having to reel myself in from distractions, but it’s so satisfying when I do.

I may always be kept waiting for certain things with my Fibromyalgia and my Chronic Fatigue Syndrome, but I’m becoming more aware and finding ways to make it positive and not negative. I hope you can too.

Share your thoughts in the comments below. I’d love to hear from you. Remember,

There is always hope!

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Waiting With Fibromyalgia

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