2019-02-13 12:00
I have been trying so hard over the past week to find the time to simply write. Somehow, I have found myself unable to do even the little I would normally do in any given day. It is taking m… Read More
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Two Rooms Plus Utilities | Written From The Heart, Blog
livinginalimitedworld.com
Written from the heart, this is the unadulterated truth of live with multiple chronic illnesses and being housebound. My life open for you to follow. Please join me
2019-01-24 12:00
Last winter I developed problems with the nerves in my thighs. It was just at the front when it began, but this winter it has spread and now it covers from the tips of my toes, right up to m… Read More
2019-01-11 12:00
I know that I have been saying for quite a long time now that I am going to come back to writing, but it somehow just didn’t seem to happen. Days passed one by one and when you live in… Read More
2017-09-13 08:52
I thought that I should add a quick post just to reassure those who kindly worry about me when I disappear unannounced, that I am still alive and as well as possible. The last few weeks have… Read More
2017-08-24 08:55
I have been having the strangest feelings lately. I keep looking around our home and all I feel is a sense of sorrow, I feel like I am seeing my home for the last time. I know that is silly… Read More
2017-08-09 08:00
We have made so much progress in the last few days. On Monday the house looked as though a bomb had hit it. We had old stuff waiting to go and new stuff piling up waiting to replace it. The… Read More
2017-08-03 09:00
Right now I feel as though I am on a playground roundabout, clinging tightly to the central pivot to stop myself being thrown off. There is so much to organise and to make happen in the next… Read More
2017-07-25 08:00
I’m heading out on another of those journeys that I find I have little choice over as it quite simply has to be taken. A couple of weeks before I took my break from blogging, my mother… Read More
2017-07-15 09:00
It still feels like every day is 10 hours too short and that I am no sooner out of my bed and I’m back there again. It has been such a strange week for me as Laura, my main carer, has… Read More
2017-07-05 09:00
It has been some time since I last made an addition to my blog and I apologise to any who have been fretting as to my well being. I assure you all that I am fine, I quite simply found myself… Read More
2017-02-24 08:44
I knew the second that I heard his voice, that what I was about to hear wasn’t going to be good news. In fact, the last time I heard from him was back in April 2014, but you can’… Read More
2017-02-17 09:13
“Frankly, I’m surprised to see you even sat here in front of me, awake at all.” Those were the first words that my neurologist said to me, once he had read my referral lett… Read More
2017-02-09 10:00
I used to find this so easy, I would just sit down here and start to write. The words would flow and I never felt as though I was even thinking, it was a flow of words from where I had littl… Read More
2017-01-30 08:00
The first month of another year is almost over and the start my 11th year of living the housebound life has begun. That is a strange sentence for me to have actually written, as the biggest… Read More
2017-01-25 10:06
I woke on Sunday morning still with a painful jaw and mouth coated in speckles of dry blood and feeling a tiredness that I both knew and expected, but otherwise fine. I might be minus anothe… Read More
2017-01-21 09:00
I don’t feel as though I have stopped for a second over the past week, others might say I have done nothing but sit on my backside, but I beg to differ.
It was Tuesday evening and I wa… Read More
2017-01-15 10:39
I never thought that I would see the day when I would be bearing my teeth to a dentist, in my living room, but that is what happened. Exactly on time my doorbell rang and two extraordinarily… Read More
2017-01-12 10:00
Living in the land of the forgotten, brings a huge number of problems, that most wouldn’t even ever think about. The problems really start with the fact the most don’t even think… Read More
2017-01-08 00:24
At last, Christmas is over, done and dusted for another year. It’s a time of year that is hard to handle when you’ve lost your health so completely. Inside you want to have every… Read More
2016-12-19 10:00
I would never have believed just how difficult it is to do nothing. I’m not talking about sitting in one place staring at the TV, no, that’s easy, that’s what we have spent… Read More
2016-12-09 09:18
“Tired”. I am so fed up of saying that word! It is as though “tired” has taken over my life, but what else can you say, when you husband is looking at you with deep c… Read More
2016-12-06 09:00
If there is one thing that living with chronic illness that we become good at, it’s dealing with loss. Loss of friends, work, hobbies, families and even those we thought would be with… Read More
2016-11-27 00:00
So what could possibly happen when you are turned down for a wheelchair by the NHS, because of where you live, but you find the perfect chair at a good price, from a reputable company? A lot… Read More
2016-11-26 00:09
I discovered the other day the ultimate lie, the NHS doesn’t care for the sick, they care for themselves. We are all told from childhood on, that no matter what is wrong with you, the… Read More
2016-11-22 00:11
I’m sorry I haven’t written for a while, but life went a little crazy for me and I simply stopped doing almost everything. When I last wrote, I was full of beans and convinced th… Read More
2016-11-12 00:15
It’s strange the things you find to fill your days, the things you find yourself not just doing, but thinking about. Despite the fact that they say that those with MS, have huge issues… Read More
2016-11-03 00:00
The day that you reach out and you ask for help, the day when you tell the world that you are no longer coping alone, isn’t the day where life gets easier, it’s the day when life… Read More
2016-10-26 08:00
Building a new life is hard. Building one, when the only components available to you, aren’t the ones you want, is even harder. It’s something that we the chronically ill, have t… Read More
2016-10-19 09:39
Slowing down was supposed to give me more time to rest, time to recover and to possibly feel, just a little like myself. Unfortunately, whatever is going on with my sleep patterns, is causin… Read More
2016-10-13 08:47
There are so many ways of looking at life, and the shitty things that happen to us, that sometimes it feels as though we’re living in a human washing machine. When we are kids, it was… Read More
2016-10-10 08:00
Today, my mind is the clearest it has been in days. Fighting brain fog doesn’t work, any more than trying to clear a path through its namesake in weather does. The biggest difference b… Read More
2016-10-08 09:18
I woke yesterday morning, not sitting on the edge of the bed, but slowly and through one of the most vivid and weird dreams I have had in years. I’m not going to do what most of you ex… Read More
2016-10-06 09:14
I’ve done it again, forgotten what day of the week it is. Not surprising really as I do so most days. Why am I suddenly living in a world where almost everything doesn’t make any… Read More
2016-10-04 09:28
I realised a couple of months ago that I was no longer able to react logically to anything when it happened, for some reason, I have developed more than delayed reactions, it’s as thou… Read More
2016-10-02 09:32
I am and always have been a lover of technology. I was the only person I know who had a PC at home for many years, as I graduated from the useless Amstrad’s, well unless you wanted to… Read More
2016-09-30 09:00
Sometimes the TV shoves things there, right in front of your eyes, which is just as frequently something you want to see, as it something we don’t want to. I doubt that many of you saw… Read More
2016-09-28 10:00
I sat in my wheelchair, staring into my kitchen with tears running down my face. Adam was at home and doing what he could, but there was water flowing in through our ceiling. This wasn&rsquo&hell…Read More
2016-09-26 09:31
There seem to be so many things that come with PRMS and Fibro that seem perfectly designed to drive us straight up the nearest wall. For example, I woke this morning to discover, that once a… Read More
2016-09-24 09:44
It’s odd how you don’t notice thing sneaking up on you. How days pass and in nearly every way, they seem to mirror the day before, yet they couldn’t have been. Logic alone… Read More
2016-09-22 09:20
How do you tell a good care company for a bad one? It’s a question I have been grappling with for the last two weeks. I am in the midst of what they call personalisation. Basically, at… Read More
2016-09-20 09:36
I have known it for a long time, in fact, many years if I am honest, that my memory, isn’t quite what it used to be. Twelve years ago, I was put through a full range of those annoying… Read More
2016-09-18 09:28
In the past few years, I have never had the slightest problem sleeping. In fact, if anything, I have slowly started to sleep more and more. My record so far, is 15 hours in just one day, 13… Read More
2016-09-16 09:34
I don’t know if you have heard of, or if you have ever considered having your medications delivered to you in blister packs. It had been suggested to us by Laurie my social worker when… Read More
2016-09-14 09:03
Why does life have to be so contrary? I constantly find myself having to start all over, with things that I was totally sure I already have done and dusted. For example, my previous post. I… Read More
2016-09-12 09:33
I know it doesn’t sound like a big deal, and I never thought that it really was until I found myself here. I have been living in this strange world of not just having to wear knickers… Read More
2016-09-10 09:23
I was chatting with the district nurse this morning about an issue I had with a prescription Adam had phoned into the doctors on Monday, she confirmed my belief, I am totally invisible to th… Read More
2016-09-08 08:11
I found myself sitting here suddenly in tears, they were pouring down my face. My life has been flipped over and over in the past few weeks, and I suddenly realised that life, my life, is so… Read More
2016-09-06 10:00
Why do we keep lying to ourselves? I know I do it all the time, in fact, there is hardly an hour that passes without somewhere in my brain that a lie appears and to make it worse, I don&rsqu&hell…Read More
2016-09-04 09:55
I have four more days until normality returns. Adam has been on holiday for five days so far, and that means I have had five mornings, doing what I normally do, but with the background sound… Read More
2016-08-31 10:00
I met my social worker for the first time today. It is nearly two months since we made our application for assistance with my care costs. They may have moved slowly, but as they say, good th… Read More
2016-08-29 09:12
My carer didn’t arrive on Saturday afternoon. I was sat here as always waiting for them to show up and give me my shower, but despite the fact they had promised, that they would be her… Read More
2016-08-27 09:00
Sometimes, writing is hard, not because of the subject, but because you know before the words are on the page, the reactions that they will bring. Ask anyone who has lived with any chronic i… Read More
2016-08-25 13:00
I’m so sorry that I disappeared as I did, but it wasn’t my fault. I was here. I was sat right here in front of my PC, as I always am, it’s just that I couldn’t get on… Read More
2016-08-16 10:00
I don’t remember when it happened, it wasn’t like there was this sudden revelation or I even made a true decision about it, I just know that it happened. Some might say that I ga… Read More
2016-08-14 09:30
It doesn’t happen often, but there are days when I find myself asking questions, probably the same questions I know others ask of me, but when they come from inside, they mean more. Do… Read More
2016-08-12 10:00
I’ve spent today being wonderfully lazy and enjoying every single second of it. Why? Because for the first time in the last few weeks, I am relaxed. Last night, for the first time in j… Read More
2016-08-10 09:55
I can’t believe just how different I feel from a couple of days ago, to today. There are two people that I really need to thank for it, and both of them are district nurses. I didn&rsq&hell…Read More
2016-08-08 09:50
They say when you watch something, it never does what you’re looking for. Well, mine eventually did. I’ve been staring at the phone on my desk, willing it to ring, for the incont… Read More
2016-08-06 10:40
I found myself sitting here falling into floods of tears, for what feels like no reason. I was fine until the district nurse called, it was the one that I really like, although I can’t… Read More
2016-08-04 10:01
Yesterday, the incontinence nurse appeared at my door. I had a memory of her saying she would be back, but I had forgotten totally the date she said she would actually be here. When the door… Read More
2016-08-02 09:48
The world and it’s dog, think of MS as a condition that affects muscles, both in pain but mainly weakness. They see us as future cripples, the people sat in wheelchairs, rarely seen wi… Read More
2016-07-31 10:19
We have a working shower!! I know that may not sound like much to you, but after not having a shower for the past 10 days, it means the world to me, at this second. I know that I only shower… Read More
2016-07-29 09:31
When you are by yourself, as I am, day in day out, it is incredibly easy to take things to heart. What I mean by that, is that when someone says something perfectly innocently, it is heard o… Read More
2016-07-27 09:30
Sunday turned into a trip into the past, not the distant and mainly forgotten, but the recent and as it turned out, equally forgotten. I mentioned in my last post that I was once more in pai… Read More
2016-07-25 11:00
I haven’t given an update recently on how things are going with my new army of carers. Much to my surprise, I have to admit that it’s not working out badly. It’s six weeks… Read More
2016-07-23 09:36
I feel like hanging out flags and setting off some fireworks. Today, after 2 months of fighting with them, Talk Talk, the suppliers of my broadband service, have agreed that the problems we… Read More
2016-07-21 10:27
I wasn’t even fully awake when I went into the kitchen to find there was water pouring into the back of the house. I don’t know when it started, but the cause was easy to both he… Read More
2016-07-19 11:00
For weeks I have been struggling to make the way from one end of the day to another, without feeling under constant pressure. It felt as though I was chasing my own tail all of the time. So… Read More
2016-07-17 11:00
I can’t believe the difference that buying my mini fridge has made. One small black cube has really changed my day. It isn’t that I don’t have to keep going to the kitchen… Read More
2016-07-15 10:00
I’ve done it a million times before, well, it feels like that anyway, so I can do it again. I never thought that my life would turn at this speed, but it has, so all I can do is piece… Read More
2016-07-13 09:00
It’s one of those days, a day when I know I have things to do and things that need doing, but all I want to do is go to sleep. Keeping my eyes open is hard and if it weren’t for… Read More
2016-07-11 00:10
Early Friday morning I had a smile put on my face by a delivery. It wasn’t what was delivered that made me smile, it was the delivery man. No, he wasn’t showing off a six pack, o… Read More
2016-07-07 10:00
I dissolved into a total mess. The tears were not running, but pouring and I had no way of stopping them. I think that it was just something that I needed to do, that point had been crossed… Read More
2016-07-06 01:01
The mental overload that I have found myself within the last few weeks is becoming exhausting. Why is it, that when life finds a chink in your mental armour, it then pours in more and more u… Read More
2016-07-05 00:01
If you’re looking for yesterday post – Getting it right for all then simply follow the link, if you’ve already read it, then why not take a dip into the past with either or… Read More
2016-07-04 01:00
As a woman, it should be easy you would think, when it comes to getting used to using incontinence pads, after all, they are exactly like the pads we use when menstruating. For me, there is… Read More
2016-07-03 01:00
No new post today, but if you’re looking for my most recent, then just klick here. For those who are looking just for a good read about life with Chronic illness then take your pick fr… Read More
2016-07-02 01:00
It appears that I’m not allowed a simple day or one where I could sit back for more than a few minutes and say I’m OK. I honestly don’t remember feeling this ill for this l… Read More
2016-07-01 14:51
If you missed and are looking for yesterday’s post well just click here – 03/06/2016 otherwise, why don’t you take a step back in time with two posts from my past:
Fir… Read More
2016-06-30 01:10
I feel so weak, I don’t have a clue why I should feel like this, but I do. In fact, I started feeling like this a couple of days ago, but it has only become worse, not better. Every ti… Read More
2016-06-29 14:40
Sorry for the missing post I promised, but I’m taking some much-needed rest, so today again, a little late due to internet issues, are two past posts for you to enjoy from 2 years ago… Read More
2016-06-28 09:59
If you’re looking for a new post today, well I’m sorry there isn’t one, but if you missed yesterday’s, this link will take you there. Otherwise how about a time trip… Read More
2016-06-27 10:00
I’m trying so hard to move forward, to accept what has been happening in the last couple of weeks, but I still feel overwhelmed by it all. Every time that I open my mouth and hear myse… Read More
2016-06-25 00:10
Yesterday should have been a really good day, as I got the long awaited letter from PIP. Yes, I know that the assessor told me that there shouldn’t be a problem, but you never rea… Read More
2016-06-23 01:10
It seems that with every day that passes, things are changing in my life. It’s not just the physical changes, the things that are clear to anyone reading my blog, but it’s also t… Read More
2016-06-21 00:12
“I wet the bed.” “Last night, I, wet the bed.” I’ve been saying it over and over in my head all morning, as I honestly don’t believe what happened, but it… Read More
2016-06-20 10:00
I thought I had seen everything that my body could do, that was until the other morning. I had woken with the alarm clock and just as normal, I swung my legs over the edge of the mattress, a… Read More
2016-06-18 01:10
I sat last night on the edge of the bed and tried to talk to Adam about what the doctor had said to us when we were at the hospital on Tuesday. I was hoping that he would be able to see it f… Read More
2016-06-16 01:10
I was at the hospital yesterday, the last of a list of appointments that I knew were ahead of me, back in January. Yes, it has taken that long to get an appointment, and it was the longest a… Read More
2016-06-14 14:28
It seemed like a new level of lunacy, but when all else has failed, why not? My skin was still trying to tell me, that I had spent the last five years sat in a freezer, despite the fact, tha… Read More
2016-06-12 01:10
Would someone please cut off my hands and give me some peace! Please!! Sorry, I’m whining. It’s not like they are the most painful things I have ever had attached to my body, it… Read More
2016-06-10 01:10
Adrenaline is such a bitch! Despite having a night with almost no sleep, the best I could manage all day was to lie in my bed and worry. I quickly worked out that distraction was a far bette… Read More
2016-06-09 01:11
It started with, “I’m worried about tomorrow”, not a great opener, but it led to my pouring out my torn and shredded heart. It was 8 pm, time for my meds and I had just joi… Read More
2016-06-08 01:11
On Sunday, I struggled through what I hope was my last shower alone. It was actually a really odd shower, as I spent the whole thing looking for those points where realistically I need help… Read More
2016-06-06 01:11
It was Friday morning that the Social Services rep came to see us. I don’t remember her name, not because of anything bad about her, quite the opposite, she was an extremely nice perso… Read More
2016-06-05 11:11
I don’t know how to write about the last couple of day, or actually, even where to start, as, in many ways, this all started about a week ago. I know that I have written about all the… Read More
2016-06-03 11:11
Putting on make up is something that I don’t do a lot, well when you’re housebound, there aren’t a lot of people to see you. Before anyone says what about Adam, well make u… Read More
2016-06-02 11:11
I have discovered that chalk and cheese really do exist, and not just in the flippant words of someone desperate to visualise to the world. Yesterday, for me was without a doubt, the cheese… Read More
2016-06-02 11:11
I have discovered that chalk and cheese really do exist, and not just in the flippant words of someone desperate to visualise to the world. Yesterday, for me was without a doubt, the cheese… Read More
2016-05-31 11:11
I seem to be spending so much of my time confused these days, lost as to what is happening and when. I knew, and I have even mentioned them several times, that I have both hospital appointme… Read More
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