2024-01-10 18:15
I had the worst news ever today! I will NEVER get the money of ESA! Even though I qualify 100%! I waited well over 2 years for this and now I got told that I will never get the money from ES… Read More
Blog Directory > Health & Fitness Blogs > Chronic Heather health-and-fitness Blog >
2024-01-02 16:50
I thought I would make a post about how to keep warm with no heating and no money in a cold home. Being unable to work and still living on under £400 a month total income, I can’… Read More
2023-12-14 13:22
Update:Strangely the government just posted on X (formally known as Twitter), saying someone has been appointed Minister Of Disabled People from the DWP.But this announcement states they are… Read More
2023-12-08 17:36
I am trying my best to survive winter with no heating at all, even though I am home 24 hours a day throughout winter (when not at any medical appointments). Last year was really bad too and… Read More
2023-12-06 18:33
I have been trying my hardest to get by the last few years, but now it is much harder and I am struggling severely. I have been blogging about my struggles for a few years and the last two h… Read More
2023-11-01 12:59
Medical cannabis was made legal 5 years ago, but even after half a decade, you still can only access it via private doctors costing hundreds of pounds a month. Not via your GP or on the NHS… Read More
2023-10-08 11:00
As winter gets closer and it gets colder and colder (where I am at least), the worrying for winter is very real. I am over £700 in debt with energy bills still, and haven’t had a… Read More
2023-07-28 14:43
Bit of an update about my pain getting worse, failed streaming attempt, struggling to get by even more than ever and more. So my chronic pain which gets worse over time, has rapidly gotten m… Read More
2023-05-10 13:08
I thought I would do a little post with any updates about health and income for 2023. If you don’t want to read it all, the short version is that my health is worse, I am struggling to… Read More
2023-04-24 13:48
The UK Government has put out a call for evidence regarding benefits levels in the UK for working age people. You have until Wednesday 3rd May 2023 to submit your evidence. This is ANY benef… Read More
2023-04-17 11:43
You might know I have no money and live on a poverty income.Well I have now been a target of theft of the only money I had! I was kindly gifted a e-gift card for ASDA by a kind person a coup… Read More
2023-01-09 18:03
I have never been so badly treated by a company as I have been by Currys and it is so bad that I honestly suggest everyone avoids them for the discrimination to disabled people. Read this an… Read More
2023-01-04 16:05
I am fed up of daily ableism. Literally all the time. Ableist, cruel people. You might think that people would be kind to disabled people struggling online.You would be wrong! So very wrong!… Read More
2022-12-22 14:02
Sadly, I know that lots of disabled people have experienced this and it isn’t nice.I deal with this usually daily or at least every other day or so. Some people when speaking to you, b… Read More
2022-12-15 14:51
The cost of living crisis and energy crisis has really had a impact on heating for me as it is just too expensive to have the heating on even though it is freezing cold with outdoor temps cu… Read More
2022-12-14 17:46
I am fed up of social media trolls who target the disabled with hate and abuse and the endless questions. I am now taking a stand. I am going to stop writing replies to the repeated question… Read More
2022-12-01 13:54
Just as I thought I wasn’t having bad luck for a week or two, the fridge broke. This is the one I bought literally just over a year ago. Currys own brand “Essentials” brand… Read More
2022-11-17 16:47
Jeremy Hunt today announced the upcoming budget changes in the Autumn statement today. As someone disabled and unable to work plus who lives on a poverty income thanks to this Tory governmen… Read More
2022-11-11 13:03
One thing that worries me that it might be contributing to health conditions, is mould. As you may know, I live in a stone house that is freezing cold all year round, even in “heatwave… Read More
2022-10-13 15:04
I have never felt to so invalidated and ignored by doctors than I do with the NHS ones. You have seen some of the big issues that I have had over the years such as the malpractice from the p… Read More
2022-09-28 15:12
I have never known a time so scary to be alive in the UK as a disabled person. The UK prime minster was changed from the useless Boris Johnson to the oblivious Liz Truss. We were promised he… Read More
2022-08-25 14:08
You might have read how so many disabled people are struggling right now. Those are the ones who get the full disability benefits too such as ESA.I can’t get that so imagine how hard i… Read More
2022-08-25 14:08
You might have read how so many disabled people are struggling right now. Those are the ones who get the full disability benefits too such as ESA.I can’t get that so imagine how hard i… Read More
2022-08-22 17:26
As the days pass and you read more and more articles about how expensive everything is getting, I get more and more disheartened and worried about winter as I won’t be able to afford t… Read More
2022-08-12 11:19
If you wonder why I have been quiet recently, well there are a few reasons. Firstly I went into A&E the other week for heart palpitations and another strange feeling in my chest. They di… Read More
2022-06-30 11:49
I had the most terrifying call out of the blue today.A lady called from my GP clinic saying she was doing a opioid review. If you are a opioid patient, I am sure you will know how much they… Read More
2022-06-27 15:13
Medical cannabis patients in the UK are being treated like smokers rather than the patients they are.This is by most companies and even some police that aren’t trained on this. I am al… Read More
2022-06-23 14:26
Eco, the boiler upgrade scheme which offers free or discounted boilers to people, has been extended to 2026, BUT they removed numerous benefits from qualifying including PIP, DLA and Severe… Read More
2022-06-17 11:12
It is common for women to have insanely packed schedules. Even if they do not work outside the house, women frequently have the primary responsibility of caring for their children, if they h… Read More
2022-06-09 15:49
Getting prescriptions and having to get my medication delivered every month should be simple right? Wrong! This is my experience for over 20 years. I have numerous medication every month. I… Read More
2022-05-27 17:04
The UK Government has finally launched a cost of living support programme. Although it could be much better, it is much better than the first energy rebate they launched! They thankfully get… Read More
2022-05-19 16:10
The cost of living crisis continues to worsen. When will the price rises end?! Food up as much as 200%! Disabled people who can’t work are the hardest hit in the cost of living crisis… Read More
2022-05-16 11:10
I thought I would give an update as I have been a bit quiet the last few weeks. Firstly, my health has been quite a lot worse. The chronic pain is a little worse but the chronic fatigue is a… Read More
2022-04-04 15:22
Why is voting in England so accessibility unfriendly? Another thing that is also accessibility unfriendly is posting mail.I can either go down in person to vote or I can do postal voting. Th… Read More
2022-03-24 11:58
In today’s society, we are constantly being bombarded with stress and anxiety. Many struggle to find the time for a healthy lifestyle and find it hard to let go of the people, places… Read More
2022-03-13 12:40
You would think the NHS and GP clinics would be accessible and follow the equality act seeing as it is UK healthcare and has millions of disabled people as patients.You would think, but that… Read More
2022-03-08 17:46
The cost of living has gone out of control but even more so for those of us who are already unable to afford to live on the little we get. Those of us disabled in England, are totally forgot… Read More
2022-02-23 17:23
The sensation of chronic pain appears to be on the increase with conditions like fibromyalgia becoming more commonplace. Everybody’s pain is different, and it’s also important to… Read More
2022-02-23 14:17
I just experienced my GP shouting, gaslighting and getting angry at me, the reception staff treating me badly, plus the staff clearly not trained enough or just incompetent as you will find… Read More
2022-02-11 15:20
As you might know, I am crowdfunding a wheelchair as I am housebound and unable to go anywhere due to being disabled and housebound. I have been thinking of all the ways that I can go if/whe… Read More
2022-02-11 13:11
I thought I would write a new blog post with an update on the major issues that are going on in my life right now as it has been a really bad few years for me and it never ends! No heating d… Read More
2022-02-09 17:17
Today, Boris Johnson announced that self isolation rules will be replaced by guidance before the end of the month.Covid is still a pandemic right now throughout the world.England stopped mas… Read More
2022-02-07 14:51
This is a public appeal to the UK Government. As energy prices and food prices shoot sky high, those of us who are disabled and unable to work are getting cheated by the government as we don… Read More
2022-02-03 15:00
My boiler broke back in November 2021 so I haven’t had any heating at all for a few months now.Outside has been-2c to 5c (24f-41f) and inside as been 3c to 7c (26f to 46f) every day.No… Read More
2022-01-25 12:55
As you know energy and food prices have risen massively for many things, yet people like myself who are disabled and can’t work get the same amount of money. I still just get the same… Read More
2022-01-13 13:14
Be careful if you get advice from Citizens Advice, I was given completely wrong information from a benefit “specialist”. As you know, all I get is PIP. I can’t get any othe… Read More
2022-01-07 13:45
As you know, I have tried getting a flu vaccine from my GP for many years. I thought I was now on the list with my latest attempt, but apparently not!Here is information about why you are el… Read More
2022-01-06 16:11
From 1st February 2021, cannabis prices on Project Twenty21 (PT21) are going up from £5 min a gram to £7 min a gram. They made a news post about it on their site.This makes price… Read More
2021-12-31 12:26
I thought I would write a little post with an update about everything that has been happening recently in an end of year update for 2021. Pain My chronic pain has been getting worse and new… Read More
2021-12-23 14:21
As you know, I am housebound and barely ever see outside these four walls, other than for medical appointments. I hate it and being stuck inside is a horrible feeling.I have no freedom. No i… Read More
2021-12-15 12:20
When people read that I get just over £300 a month total income from a disability benefit, many people often think you aren’t claiming all you can and they reply and tell you abo… Read More
2021-12-13 13:25
Multiple BIG issues living where I live that leave me living in a street that gets flooded every time it rains and even has sewerage in the garden, right up to the front door when it rains h… Read More
2021-12-06 13:10
My name is Heather and I am writing a public plea to the UK government and NICE to do something so that people like myself can get a legal painkiller (Cannabis) on the NHS.I know that they a… Read More
2021-11-17 14:11
Over the last year and especially over the last few months, prices of essentials has been rapidly increasing. Everything is getting more expensive in England. The majority of price increases… Read More
2021-10-25 15:34
Having chronic fatigue (CFS), I should be able to get a free flu vaccine every year but I don’t!Why? Because doctors, nurses and other people read the eligibility but as they don&rsquo&hell…Read More
2021-10-22 14:47
Every day is such a battle. A battle with health, money and just life. I wake up at 11am with my alarm otherwise I would sleep all day due to chronic fatigue plus the opioids and amitriptyli… Read More
2021-10-19 14:05
As you know I can’t get ESA or UC so I live on PIP alone which isn’t enough to live on. You can read more about it here.With energy prices going very high (especially gas), the g… Read More
2021-10-18 14:21
Does the NHS not care about “reasonable adjustments” as per the equality act? Doesn’t seem to seeing as they don’t let you go to closer clinics when you are disabled… Read More
2021-10-15 11:43
I now have developed bladder issues. Another thing to add to the list! And I have added to the list literally on my about me page which lists all my conditions and medicines. I had many UTI… Read More
2021-10-12 13:52
Recently I have a few updates about rheumatology, MRI, PIP and medical crowdfund. Rheumatology I was seen in Rheumatology again due to my abnormal autoimmune blood tests. The doctor this tim… Read More
2021-10-10 11:45
If you didn’t know already, I have a FAQ which answers all the questions I get asked the most. If you have any questions check this out as all the usual question and answers are there… Read More
2021-10-06 12:13
Being chronically ill and disabled and also on social media a lot, I get to be the target of trolls quite often. Anyone that knows me, knows I am very strong willed, some anger issues, don&r&hell…Read More
2021-09-26 12:10
I desperately need your help. I am chronically ill, housebound, unable to work and in extreme pain every second of my life. Please if you have a few pounds/dollars/whatever to spare, please… Read More
2021-09-24 12:47
I have numerous chronic illnesses and health issues as you know.In all the years since I have had them, in numerous doctors GP clinics and different GP’s in each clinic, no doctors eve… Read More
2021-08-26 14:16
I was lucky enough to receive the Formline smell proof pouch which is a wonderful pouch with lots of room to store my vaporizer, grinder and medical cannabis in that does not leak smell. I h… Read More
2021-07-17 10:58
As I have to vaporize cannabis multiple times everyday for chronic pain via a legal medical prescription, having a good vaporizer is important. I am excited to try out the Arizer Solo II vap… Read More
2021-07-16 12:22
I have been using medical cannabis for a short while now. Legal from my private doctor as I can’t get it on the NHS. This is thanks to my crowdfund which I couldn’t have gotten a… Read More
2021-07-01 11:18
As you know, I recently started with a medical cannabis prescription which is medically legal here in England, and as I have to vape it, that means I can try out some really great vaporizers… Read More
2021-06-25 16:05
As you may know I am crowdfunding medical cannabis for up to one year as I can’t afford it myself as I can’t work and am on £300 a month income which isn’t enough to… Read More
2021-05-27 16:59
I have decided to crowdfund via JustGiving for medical cannabis for my severe, debilitating chronic pain, migraines and sciatica. I have suffered long enough and it is only getting worse. Yo… Read More
2021-05-13 15:48
In England, you can get cannabis for chronic pain medically legal, BUT only if you go see a private doctor and pay hundreds a month. NICE who make the guidelines for the NHS won’t allo… Read More
2021-05-13 11:20
Remember my previous post that you can read here, about the pain clinic’s anaesthesiologist’s lies, made up side effects I don’t have, made up conditions I don’t have… Read More
2021-05-07 12:22
Firstly for background, I have chronic fatigue, chronic pain and many more conditions as shown on the about me page I had my first COVID AstraZeneca vaccine on Tuesday. Another in 12 weeks… Read More
2021-04-25 11:30
First a few updates on things. My sciatica type pain has got worse. The amitriptyline that was for the sciatica and migraines seems to have stopped working. More migraines and worst sciatica… Read More
2021-04-07 12:53
Remember last year I was urging you to contact NICE about the draft chronic pain guidelines?Here, here and here are the postsWell they published them now and they are pretty much the same! T… Read More
2021-04-06 14:49
If people think they have it bad, think about myself. Disabled and living in England on just over £300 a month.That isn’t enough to live off. Rent alone anywhere costs more than… Read More
2021-04-06 12:09
This is not related to my health, but it is the Twitter account that I use to tweet from which is @chronicheather. I’ve had my Twitter account many years now. They once updated the fea… Read More
2021-03-15 13:18
As you know I have severe chronic pain and chronic fatigue. I also have a septal perforation in my nose. I fought for over 3 years to get autoimmune tests after the nose perforation (after t… Read More
2021-03-04 12:06
As you may know I can’t get ESA or UC so I live on PIP at £300 a month which isn’t enough for me to get by. I need National Insurance credits or I won’t get a pension… Read More
2021-03-02 13:37
I have been on a waiting list at one NHS dentist for nearly 5 years!There are no dentists taking NHS patients, only private ones. I have emailed healthwatch and NHS England and got nowhere… Read More
2021-02-23 15:42
After getting four positive autoimmune tests and seeing as the rheumatologist isn’t any help and my doctor said to me that he doesn’t know about autoimmune issues, I am now stuck… Read More
2021-01-13 11:51
Well my Rheumatology at the hospital was a waste of time and pretty dreadful! As you may know I have chronic pain and chronic fatigue, both of which got much worse in the last 3 years to the… Read More
2021-01-01 13:07
Many have had to deal with this, but now I have too. Cruel trolls that target disabled people to harass them with lies.The one that targeted me made two brand new fake accounts on Twitter ju… Read More
2020-12-22 13:45
As after I couldn’t work full time anymore, I went to work part time and then casual work after my health deteriorated rather than just quitting and claiming as I wanted to work for as… Read More
2020-12-06 13:35
With it coming up to Christmas, many people are booking online slots so it is now impossible to get slots online. I also don’t have the luxury of being able to go out to get my food in… Read More
2020-11-23 12:28
So after ASDA told people the priority pass would be free delivery only over £40 from November, then said they made a mistake and staff saying that were wrong, including the CEO office… Read More
2020-11-12 16:15
I chased up my Rheumatology referral today after the deadline that they were supposed to call back arrived and they hadn’t called me. For those that don’t know, I had four positi… Read More
2020-11-10 14:36
After my autoimmune tests came back positive for four different things (previous blog post), I had another test for liver functions, B12 and folate. The tests came back with B12 and folate b… Read More
2020-11-03 12:42
As of November people with a priority pass at ASDA haven’t been able to order food due to not only a huge bug where there is a minimum order fee of £1000 they still haven’t… Read More
2020-10-31 12:53
After spending YEARS trying to get more blood tests for my chronic pain and chronic fatigue, I finally got my GP to send me for auto immune tests!I have had chronic fatigue for 30 years roug… Read More
2020-10-19 11:57
If you read my blog or Twitter, you will know that I can’t get ESA due to not having paid enough National Insurance Contributions due to having worked part time before being unable to… Read More
2020-10-15 11:00
I was incredibly angry to read that the NHS in the UK will be spending £10 million funding “long covid” clinics in every area for those that have fatigue after having coron… Read More
2020-09-29 13:37
I have had numerous issues with supermarket deliveries with drivers not helping with unpacking crates which I am unable to unpack due to disabilities which breaks the equality act. For peopl… Read More
2020-09-15 11:58
One thing that a lot of people seem to not realise is that pain levels vary between people and severities in chronic pain. Just because you have chronic pain and so does the next person, tha… Read More
2020-09-09 12:45
This is your last chance to give your feedback using the comments form on the NICE website regarding the upcoming chronic pain guidelines that doctors will use for prescribing medication and… Read More
2020-09-01 13:23
Living in the UK when you say you are disabled, people assume you are being looked after. Even other disabled people assume you get the disability benefits to help you.I am here to tell you… Read More
2020-08-05 18:42
If you have read the draft NICE Chronic Pain guidelines or my article about them and are affected or against this upcoming policy regarding removal of painkillers for chronic pain, you need… Read More
2020-08-03 13:32
NICE (who give guidance to the NHS which doctors follow) are reviewing the guidelines for chronic pain and making it worse yet again for us. They are now advising against the use of many pai… Read More
2020-07-31 17:29
Being chronically ill and disabled, plus unable to afford a car on the pennies a day I live on, I have to rely on deliveries as I can’t go out.I used to get food from a cheap supermark… Read More
2020-07-23 12:33
When you are severely chronically ill, celebrating birthdays is often a low priority. As my birthday rapidly approaches which is a big one this year, I feel like I did at 18 although my body… Read More
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