2023-03-07 23:53
Beautiful flower photo taken by CindyMy mom had passed away in our home just a few hours before. She passed away peacefully with her family by her side. The mortuary people drove h… Read More
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Ftd Dementia Journey Blog
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My mom was diagnosed with Frontotemporal Dementia at the age of 56. I had a stroke in 2016. Come on this FTD Journey with us!
2020-03-27 15:04
I've been keeping a secret from you all here. I haven't been able to find the right words. BLESSINGS & MIRACLES do happen! I have been reminded of this the last few months. We brought Ci… Read More
2020-03-26 20:13
March 24, 1957 - February 28, 2020 My heart is overfilled with love and appreciation! I can't thank everyone enough for treating me so special during this harder time for me!&nbs&hell…Read More
2020-03-26 20:11
Cindy has been blessed with visitors this month. I haven't been good at taking pictures, but her grandkids, doctor, nurse, caregivers, and CNA's have visited her, too. I like to joke that C… Read More
2020-03-26 19:39
Halloween felt like another typical day. That is how I was treating it. I didn't prepare to have my mindset in the right place for Halloween. I thought having my mom dress up in… Read More
2020-03-26 19:38
It's hard to believe that it has been 5 months since Cindy has come home to live with Paul and me. It will be 5 months next week. The first few months were the hardest for us. I… Read More
2020-03-26 19:31
37 years ago this week, my mom gave birth to me. For that, I am forever grateful to her & all she endured to help give me life. I have learned with Dementia to . . . NOT set high expec… Read More
2019-09-19 21:07
Come a long with us on our journey during a Busy Day in the Life of Cindy Who Is Living with Dementia.Here we go. . . . This wasn't our typical day. In fact, it was a jam packed day fil… Read More
2019-08-23 15:44
A special thanks to all the nurses who go above and beyond for their patients....... that do things they don't have to do. Just a simple act of service can relieve something that's on a care… Read More
2019-05-15 16:30
HappinessHopeHumilityI wish I was talking about these words, but those aren't the words that I am talking about today.The H word that I am talking about is . . . .Hospice.Earlier this year… Read More
2019-05-07 16:34
Moving Out DayI have had so much to say. I just haven't been able to find the words to tell you. This year seems like many changes have come. I have mostly been wordless because of the chang… Read More
2019-03-26 17:00
Raw emotions coming... 62 years old with many years of dementia behind her. I won't lie I miss my mom. She's still alive, but so much of her has disappeared. She was diagnosed at 56 with Fro… Read More
2019-02-28 22:13
Today is Rare Disease Day! Would you have thought that Frontotemporal Dementia is a rare disease? I wouldn't have. A form of dementia on the rare disease list? Dementia is so common! No Way!… Read More
2019-02-13 19:02
My mom was sitting up to a table eating her dinner last month, one evening. We had just barely dropped her back off at memory care. I chatted a little bit with her friend that sits nex… Read More
2019-01-15 17:16
What do you see in these photos?I see . .• a straw wrapper, that is now garbage • keys • a bill / mail • a recei… Read More
2018-12-18 17:01
We had a special visitor visit Cindy at memory care last week. It was one of Cindy's best friend that she met during her working days, back in the early 2000's. Cindy would call her "Debbie… Read More
2018-12-03 18:12
It's beginning to look a lot like Christmas! Everywhere we go!The Christmas tree is up.The Christmas decorations are hung. Snow is falling. Snow is everywhere we look. On the ground, ro… Read More
2018-10-20 18:13
We were able to participate in the AFTD Food For Thought Event this year! There are events for AFTD Food For Thought in ALMOST every state in the USA, that occur, anywhere from the last week… Read More
2018-09-12 21:13
I've been thinking a lot lately. I've been thinking that I will never hear my mom say these sentences to me, by herself, again . . . . I love you!I am so thankful for you!Thank yo… Read More
2018-08-31 21:01
I'm happy to announce that we are hosting a fundraiser event to raise awareness and money for The Association for Frontotemporal Degeneration. All donations and money will go directly to AFT… Read More
2018-07-30 22:14
We were able to spend the weekend with Cindy. We did a lot of fun things and some not so fun things.We started off the weekend, on Friday, with pampering Cindy with a shower, manicure… Read More
2018-07-17 19:02
My mom was able to go to her Family Reunion last month. Her sister, Linda, was so kind & put the family reunion together.I was a little hesitant to myself, and wondered how my mom would… Read More
2018-07-09 20:09
My family and closest friends have seen me at my lowest points. They've seen me cry more times than I'd like to admit. I like to show a strong face, but the truth is behind the internet, I d… Read More
2018-06-25 21:56
I heard the words, "how do I do this", blurted out of my mom's mouth. I was busy putting away my mom's shower supplies, after she had showered, when I heard these words. I glanced over… Read More
2018-06-07 01:52
We took Cindy to another doctor's appointment yesterday for a follow up. All went well. These appointments seem like a breeze these days, compared to when she was first diagnosed. She has no… Read More
2018-05-11 17:29
My mom has taught me so many things throughout my lifetime. More than she will ever know.I feel like she has been teaching me the most meaningful lessons throughout the last few years, while… Read More
2018-05-01 20:34
Here are some of my top stress relievers that have helped me in stressful times during the last few years.1. Meditation - YouTube videosI found out about meditation and YouTube videos just a… Read More
2018-04-21 16:21
Dementia robbed my mom of being the grandma that she wanted to be. Dementia did not allow my mom to be the grandma that she looked forward to becoming. My mom was in her prime time of being… Read More
2018-04-17 15:16
I did a quick birthday makeover on Cindy. I put some blush, mascara, and lipstick on her. It was time to PaRtY! She gave her makeover a thumbs up. :) We decided last minute to invite fa… Read More
2018-03-29 15:51
I have come to learn that through the years going through dementia you will continually have jaw dropping moments. You will think to yourself over and over "Did I just really see that?", or… Read More
2018-03-26 19:12
I recently noticed that my mom's hair was getting harder to comb, and it was harder to wash her hair with it being longer. It was time for another haircut!I scheduled Paul's & Nata… Read More
2018-03-13 15:44
I have found many notes that my mom wrote prior to her dementia diagnosis. She would write her frustrations down sometimes. This note above was written in the year 2008. My mom was diagnosed… Read More
2018-02-20 21:22
Today marks the one year mark that our mom has lived at a memory care assisted living! I'm not quite sure if I'm suppose to celebrate, feel sad, smile, or cry about it.As I reflect on this… Read More
2018-02-07 20:23
We had a last minute doctor appointment yesterday. The doctor wanted to follow up with my mom, in order to give refills on prescriptions.Everything went well. My mom was happy to go to the d… Read More
2018-02-06 19:07
What is a support group? Have you ever wondered what the purpose of a support group is?Support Definition - To bear or to hold up.To bear the weight of especially from below; keep from… Read More
2018-02-02 00:04
I've had a lot of words come to my mind lately. I just haven't known how to put them all together. I heard this song today, and thought this is how I have been feeling lately.This song broug… Read More
2018-01-24 19:33
Our conversations have become quieter lately. Not completely quiet, just quieter. The talking and laughing has gotten less. I watched my short mom sitting in the front passenger seat next to… Read More
2018-01-17 19:02
I have been blessed to have my mom be my biggest cheerleader in life! My mom would motivate me, give me sweet messages, and just try to help pick me up whenever she saw that I needed it. I h… Read More
2018-01-11 17:18
Warning: This is a long post, but this could help save you or your loved one's life! This message is important! Thank you for reading & helping me spread awareness to Strokes!I feel comp… Read More
2018-01-02 18:40
I would say overall the year 2017 has been good to us! We have made it another year! I feel blessed, and hope you are all blessed in 2018!Here are our top honest events that happened this ye… Read More
2017-12-29 18:11
We hope you ALL had a wonderful Christmas this year! We have felt blessed this time of the year. We have been very grateful to be able to spend another Christmas with our mom.We were able to… Read More
2017-12-20 21:56
This is a recipe that my mom would always make during Christmas time. It never failed. She would be excited to make this pie for our Christmas Eve parties.As I look back now, I realize that… Read More
2017-12-11 18:19
My mom was a computer whiz, back in the older, computer days. Back in the desk top computer days. She was such a whiz. I never got the chance to learn all that she did with the computers, ba… Read More
2017-12-06 16:33
Paul had a Christmas party for his past clients this past Saturday. This was the first time that Paul and his team decided to have a Christmas party for their past clients. I wasn't sure if… Read More
2017-12-05 00:53
I can't believe that it is December already! This year really went by super fast!I notice that I have a lot of people checking out my posts who have family that has FTD. My blessings and hea… Read More
2017-11-28 18:00
Let's face it head on. No positivity, to cover the negativity. No sugar coating it. Showers are SO HARD for people with Dementia, and in our case, especially Frontotemporal Dementia.Showerin… Read More
2017-11-21 01:54
We are sporting our new t-shirts to help spread awareness about Frontotemporal Dementia! We are pointing to our shirts with our thumbs.Have you heard of Frontotemporal Dementia before? I had… Read More
2017-11-17 17:25
Our FTD story started out with my mom making a trip to the hospital and getting admitted into the hospital. My mom was admitted into the hospital for a few days in November 2013. You can rea… Read More
2017-11-15 17:41
Life had other plans for us this week.I really can't believe that I am writing this post so soon. We always thought Tiger would outlive our mom. We never once discussed losing Tiger first. T… Read More
2017-11-10 20:11
There is something about dementia and darkness. Darkness changes my mom's mood. She becomes quiet and doesn't talk or laugh as much, when darkness arrives. My mom doesn't like it when the ev… Read More
2017-11-06 16:29
The honest and raw truth is.....I miss my mom.You may see a smile on my face. You may see me laughing, but the honest truth is - I miss my mom.I have been having anticipatory grief for awhil… Read More
2017-10-31 19:06
We hope you all have a HAPPY HALLOWEEN!We have had some fun with my mom the whole month of October! It's amazing that today is the end of October already. Halloween has always been a fun mon… Read More
2017-10-24 17:51
My mom's favorite activity is hands down (even though we have our hands up) . . . . . is going for a drive. My mom has LOVED going on a drive during her whole bout with Frontotemporal… Read More
2017-10-16 21:11
My brother wrote a post on Facebook about our journey with Frontotemporal Dementia. I wanted to make sure you all saw his post, too. I'm posting it here to keep record of it. Thank you, Jon… Read More
2017-10-09 18:45
My mom is ready for Halloween to come! Her room is all decked out in Halloween decorations. My mom has her window and 3 doors decorated for Halloween.We thought it would be fun to have a Hal… Read More
2017-10-06 23:57
Our saying has been . . . ."You Never Know What My Mom Is Going To Say or Do Next".This same saying applied to her last night. This saying is so very true with dementia. Nothing can prepare… Read More
2017-10-02 22:26
It was my birthday this weekend. My mom never missed a birthday. She loved it when it was my birthday. She would always write a birthday card to me every year. It wasn't just an ordinary bir… Read More
2017-09-26 18:22
My mom was able to have a reunion with her kitty cat, Tiger, this weekend! She had been waiting for this moment for awhile.Tiger let my mom hold him for just a minute. He's never really been… Read More
2017-09-25 16:16
#Caregivers are your loved ones hero, but when you have these symptoms of #caregiverstress lay your cape down to relax recharge and reflect pic.twitter.com/OVMr4K6C9j— Terri Anderson (… Read More
2017-09-18 16:07
I have heard stories from different people about their loved ones with Frontotemporal Dementia who have some kind of an obsession or repetitive behavior. Something they do over and over agai… Read More
2017-09-11 17:55
My mom lives just down the street from a bakery place called "The Chocolate, A Dessert Cafe", located on 9118 S Redwood Road in West Jordan, UT. We drive by there quite frequently when we ar… Read More
2017-09-09 17:16
It seems like every time I fill up gas in my car and I pay from the pump, I am asked if I would like to buy a car wash or not. I have ALWAYS hurried and pressed no, but not on this day. This… Read More
2017-09-06 17:58
I'll admit that I use to be the one who thought dementia was just a memory problem. I never had any clue that dementia was MUCH MORE than just a decline in memory. I wasn't educated very wel… Read More
2017-08-18 18:49
I never thought this day would come, but it has. My mom has refused to take her medication on several occasions.We have received several calls that my mom will not take her medication. This… Read More
2017-08-16 17:07
Growing up, my mom was a fan of Celine Dion, Lionel Richie, Martina McBride, Neil Diamond, Enya, and Kenny G. Just to name a few.My mom is NOW the BIGGEST FAN of Bruno Mars! She has liked Br… Read More
2017-07-26 17:38
It's amazing how the brain works.I remember when my mom was younger and she would go to painting classes. She would come home with new projects she had completed. The painting proj… Read More
2017-07-24 22:34
It’s true! My mom was diagnosed with Frontotemporal Dementia at the age of 56. She is now 60.I have never spoken publicly about this and I have only spoken to a select few about w… Read More
2017-07-12 22:31
Cindy and her sister on a Sunday fun day! Photo credit goes to my mom's sister!Sunday is my mom's fun day! She is always looking forward to Sundays. My mom usually has a visitor every Sunday… Read More
2017-07-12 15:18
It just dawned on me this weekend. My mom can no longer turn the tv on and use the remote by herself. This task has become to hard for her.My mom has been struggling on how to work the remot… Read More
2017-07-12 00:11
The #1 question we get asked is - What were the first signs that your mom had, before she was diagnosed with dementia?We have people sometimes asking us this ques… Read More
2017-07-11 14:19
My mom's beloved cat has gone to a new home. He is now loved every day by so many. More than he could have ever imagined. He has gone from a semi quiet home to a busy full house. He now gets… Read More
2017-07-09 19:23
The biggest and hardest question is ....when should you take away car keys from your parents?Your parents are the ones that most likely helped you gain driving privileges in your teen years… Read More
2017-06-26 21:37
My mom now resides in an assisted living and memory care place called BeeHive Homes. She moved there February 20, 2017. We have been blessed and the transition went perfectly. Sooo much bett… Read More
2017-06-19 21:02
November 2015Thanksgiving is a great time to be thankful, but ALL year long, we should continue to be thankful.We are thankful for so many things, but we are especially thankful for YOU!Tell… Read More
2017-06-19 16:55
I received a text from my mom at 2PM on Friday last week. The text read "Two men were here, they are coming at 10am tomorrow!!!!!!!!!". I thought to myself, "what ar… Read More
2017-06-14 21:05
The doctor asked my mom to name all the animals she could think of within a certain amount of time.She was naming them off. Tiger.Bear.Cow.I thought to myself "she's doing great!"And then we… Read More
2017-06-12 18:02
Hello! I have just noticed that time has passed by on here. I will write a quick update on Cindy/Mom.Cindy is doing well. She is happy & content. Paul and I took her to a follow up 6 mon… Read More
2017-06-12 05:44
My mom made it to the age of 60 today! She is 60 years young now! This year she didn't know how old she was. She would shrug her shoulders if you asked her how old she was.She received a few… Read More
2017-06-12 05:44
I am so glad that my mom is HAPPY (for the most part) and loves to laugh. I love it when I catch her on a good day and she just laughs and laughs at anything I say or do. I am so grateful th… Read More
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