2020-02-07 14:32
Multiple myeloma is not a hard disease to diagnose if you know what to look for, but the signs and symptoms are very generic and may be easy to ignore. Suzanne Lentzsch, MD of Columbia Unive… Read More
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Valentines Day or Saint Valentine's Day or Lover's day is a special day for all the people in the world
2020-02-07 03:36
Myeloma is a complex disease, with much to learn. Learning about the genetics alone can feel like you are immersed in another language. It can be confusing and overwhelming. Rese… Read More
2020-02-07 02:47
The most recent issue of the journal Blood Advances provides us, myeloma patients, with good news. The article presents long-term follow-up data of over 4,300 patients from the University of… Read More
2020-02-06 21:21
Could a vaccine prevent smoldering myeloma from progressing to active myeloma? An early Phase I clinical trial at MD Anderson Cancer Center is developing a personalized vaccine for smolderin… Read More
2020-02-06 04:54
Robert Orlowski, MD, PhD MD Anderson Cancer Center Interview Date: January 30, 2020 Thanks to our episode sponsor Summary The new year (and new decade) promises to bring rapid progre… Read More
2020-02-05 17:33
It's not easy to know what it is really like to be a myeloma patient. Takeda Oncology and Snow Companies wanted their employees to know what it feels like to live with a myeloma diagnosis in… Read More
2020-02-04 22:21
Today is World Cancer Day, an international day to raise awareness of cancer and to support its prevention, detection and treatment. According to the National Cancer Institute: I… Read More
2020-01-31 14:39
Muscles for Myeloma is a campaign promoting fitness for multiple myeloma patients. Because fitness levels determine possible treatments, it is critical that patients stay healthy as possible… Read More
2020-01-31 14:32
Register Today We are delighted to host the 4th Annual Muscles for Myeloma 5K and 1 Mile Walk in Columbus, Ohio on May 30, 2020. The race was established by the Move MMORE Legacy over 10 ye… Read More
2020-01-31 04:48
New immunotherapies in myeloma called CAR T therapy use a patient's own genetically-engineered T cells to attack the tumor. This breakthrough therapy is making its way through the FDA approv… Read More
2020-01-31 02:14
One of the first questions every myeloma patient asks when they are diagnosed is "How long will I live with multiple myeloma?" The second most common questions is "Is there a cure?" In this… Read More
2020-01-31 01:27
Mary Quarterman lived with and monitored her smoldering myeloma for years. She decided to consult a Myeloma Coach when she was considering starting treatment. She recently shared… Read More
2020-01-31 01:06
A cancer diagnosis can affect relationships in all sorts of ways, both negative and positive. I asked myeloma patients and family members how myeloma affected their relationships and if ther… Read More
2020-01-31 00:15
Cannabis. That’s the topic for today. There are plenty of posts on a variety of cancer blogs, not just multiple myeloma, touting cannabis for this or that solution to a problem or side… Read More
2020-01-27 17:55
In myeloma, it is known that patients who are taking monoclonal antibodies that target CD38 can have "detectable" levels of a monoclonal protein, when those levels are actually related to th… Read More
2020-01-24 04:44
How is active myeloma defined? CRAB In the past, multiple myeloma was defined by four important "CRAB" features: Calcium, Renal, Anemia, and Bone Lesions. Each of these helps determine if yo… Read More
2020-01-24 01:37
It is fair to say that, from multiple myeloma chat groups, support groups, blogs, etc. we have heard or read stories (or, heaven forbid, from personal experience) that fellow patients have c… Read More
2020-01-24 00:51
The Myeloma Crowd has numerous ways to connect with other patients and caregivers. We believe that when we are together, we are stronger. Everyone has a story and through our social media ch… Read More
2020-01-23 04:09
Thursday, January 30 @ 9 am Pacific, 10 am Mountain, 11 am Central, Noon Eastern Call In by Phone to Listen Live: (347) 637-2631 or Listen Live Via Computer What innovation is coming in 2020… Read More
2020-01-22 21:31
Join HealthTree Today What is HealthTree? HealthTree is a free, new tool created by myeloma patients for myeloma patients. HealthTree is an online tool myeloma patients can use to navigate… Read More
2020-01-21 04:56
Cardiff University researchers have discovered a new a new type of T cell that can kill a variety of cancers, with the hope of creating a general "one-size-fits-all" T cell therapy. CA… Read More
2020-01-17 14:33
When my husband was diagnosed with myeloma in 2015, we found ourselves on a road that was completely unfamiliar. We didn't what the terrain was going to look like, where to start, how… Read More
2020-01-16 19:14
The Myeloma Crowd Research Initiative (MCRI) is a new approach to funding cancer research; combining the skill and knowledge of leading myeloma specialists with the patient perspectiv… Read More
2020-01-16 18:42
Many myeloma patients are familiar with the chemotherapy called melphalan, which is regularly used as part of the stem cell transplant process. A Swedish company called Oncopeptides AB is de… Read More
2020-01-16 00:43
Tanya Wildes, MD Siteman Cancer Center Interview Date: November 6, 2019 Thanks to our episode sponsor Summary How does treatment for multiple myeloma change with age? Hear Dr. Tanya… Read More
2020-01-15 23:23
Myeloma Crowd Radio is an online radio series of patient-led interviews with top myeloma experts. A majority of the interviews focus on learning about a new clinical trial - who is eligible… Read More
2020-01-15 21:34
According to myeloma patient advocate Jack Aiello (definitely not medically trained) (Glossary of terms are below) PREFACE This is my 14th year attending ASH (American Society of Hematology)… Read More
2020-01-14 20:05
On November 16, 2019, a Myeloma Crowd Round Table meeting was held in Austin, Texas at the Thompson Conference Center at the University of Texas featuring five myeloma experts, including: Cr… Read More
2020-01-14 01:09
Many of us, most likely, read as much as we can about CAR-T treatments. Not that there is an abundance of data out yet for the multiple myeloma CAR-T products that are at late development st… Read More
2020-01-10 18:17
One in three people in the US will have to deal with a case of shingles in their lifetime. It is, most likely, safe to say that anyone of us know the misery that comes with shingles either f… Read More
2020-01-10 16:40
Myeloma Crowd Round Tables are day-long patient education meetings with top myeloma experts. Each meeting is focused on assisting patients and caregivers in making the best decisions about t… Read More
2020-01-10 16:37
MYELOMACOACH.ORG January is National Mentoring Month which is the perfect month to highlight our Myeloma Coach program! The Myeloma Coach program is a free program focused on he… Read More
2020-01-10 16:35
There already is much excitement in the multiple myeloma community about the possibility of FDA-approval for one or more anti-BCMA CAR-T products in the coming 12-24 months. Early data that… Read More
2020-01-10 16:12
A cancer diagnosis can throw anyone into emotional turmoil and individuals can experience a wide range of emotions. Emotions ranging from determination, worry, fear, anger, denial and… Read More
2020-01-08 21:20
Minimal Residual Disease (MRD) testing is a way of testing how much disease is left after myeloma therapy. MRD testing is now being used more often in the clinic to gauge how well a treatmen… Read More
2020-01-08 20:50
"High risk" multiple myeloma may not always be considered high risk if a specific treatment can be found for it. In multiple myeloma, genetic or DNA mutations can change the way… Read More
2020-01-07 20:31
Register Cambia Grove Utah welcomes Elisabeth Rosenthal for a discussion surrounding the U.S. health care system. On January 22, Cambia Grove Utah and host Jennifer Napier-Pearc… Read More
2020-01-01 15:54
By: Elise Martin, Myeloma Coach Returning home from the ASH conference, my husband and I had occasion to try to synthesize and apply our ASH experience to our role as Myeloma Coaches, as the… Read More
2020-01-01 15:36
Join HealthTree University What is HealthTree University? HealthTree University is a full curriculum about multiple myeloma. It will include over 30 courses and 600 lessons on a wide range… Read More
2020-01-01 15:34
On November 2, 2019, a Myeloma Crowd Round Table meeting was held in Buffalo, New York at the Hyatt Place Niagara Falls featuring four myeloma experts, including: Dr. Matthew Drake, Mayo Cli… Read More
2020-01-01 15:30
Watch the Patient Power Video What does myeloma treatment look like in the age of immunotherapies? Jenny Ahlstrom, Founder of the Myeloma Crowd hosts three amazing myeloma specialist… Read More
2020-01-01 14:38
The Myeloma Coach program provides one-on-one help for myeloma patients. Here are our Top 10 reasons you should find or become a Myeloma Coach in 2020! 10. Become educated. Knowledge is key… Read More
2019-12-28 04:43
As seen on the ASCO Post Through my advocacy, I’m contributing to making a cure possible for myself and others. By Jenny Ahlstrom as told to Jo Cavallo December 25, 2019 Jenny A… Read More
2019-12-23 22:49
What is "double hit" myeloma? Double hit myeloma is when a patient has two or more high risk myeloma genetic features at the same time. Martin Kaiser, MD is head of the Institute of Cancer R… Read More
2019-12-20 03:59
Smoldering myeloma was a hot topic at the recent American Society of Hematology meeting, Researchers are especially intent on discussing how to treat high risk smoldering myeloma - or patien… Read More
2019-12-20 03:26
One of the late breaking sessions at the American Society of Hematology meeting included results from a study looking at a completely new combination - carfilzomib, daratumumab and dexametha… Read More
2019-12-20 02:43
Myeloma Coaches come from a variety of backgrounds. Coaches may be a myeloma patient themselves, a caregiver, adult child or an extended family member of a myeloma patient. Each… Read More
2019-12-20 02:07
At a session of the American Society of Hematology meeting, three prominent myeloma specialists discussed a variety of topics for relapsed or refractory multiple myeloma patients. Cris… Read More
2019-12-19 18:04
The microbiome is the community of bacteria, yeasts, and viruses that live in the gut. There are more cells in the microbiome than all of the cells in the rest of our bodies. In fact… Read More
2019-12-19 14:05
Venetoclax is FDA approved for use in certain types of leukemia. It proved to be useful for some leukemia patients with a chromosome 17 P deletion. For the past few years, Veneto… Read More
2019-12-19 13:39
Rafael Fonseca, MD is the Chair of Myeloma at the Mayo Clinic in Scottsdale and recently shared a Twitter thread (of 26 tweets) that asked the question "What is the Risk Classification of th… Read More
2019-12-17 21:25
A session preceding the 61st ASH annual meeting, entitled “Optimizing Clinical Outcomes In Blood Cancers Through Groundbreaking Translational Research” was held where Ola L… Read More
2019-12-17 21:03
Many of the American Society of Hematology (ASH) presentations in myeloma included information about daratumumab. We covered some of the findings in an earlier article about the Griffin stud… Read More
2019-12-17 19:35
On the final day of ASH there were many presentations of four-drug studies where daratumumab has been added to backbone triplets for newly diagnosed, transplant-eligible patients. Dara… Read More
2019-12-12 21:24
By Richard Hite, as told to Jo Cavallo ASCO Post November 25, 2019 I was just 39 in 2015 when I was diagnosed with multiple myeloma. I have a wife and three young children whom I love, a cha… Read More
ASH 2019: The Importance Of Emotional Intelligence (EQ) For AÂ Myeloma Patient, Caregiver, And Coach
2019-12-12 21:10
Dr. Rick Stevenson, a filmmaker and philosopher, was the guest speaker at a program hosted by Bristol Myers Squibb at the 61st American Society of Hematology (ASH) Annual Meeting in Orlando… Read More
2019-12-11 20:57
My purpose for attending the ASH conference was two-fold; first, to develop a clearer understanding of what the options can be for the next phase of treatment for my disease, which I will al… Read More
2019-12-10 22:38
There is so much CAR T development happening in myeloma, it's hard to keep track of it all. One of the sessions discussed relapsed and refractory myeloma strategies and almost all of the dis… Read More
2019-12-10 21:00
At the 2019 American Society of Hematology (ASH) Meeting in Orlando, a group of investigators from several institutions including: Harvard Medical School, Broad Institute of MIT and Harvard… Read More
2019-12-10 20:42
An educational symposium entitled “CAR T-Cell Therapy in Lymphoma, Myeloma, and Leukemia- Clinical Updates and Innovations” was presented preceding the 61st American Society of H… Read More
2019-12-09 23:05
Thank you to all those that participated in Giving Tuesday this past week! After a week full of giving, we raised over $203,000 for myeloma research - wow! Thank you, thank you for making th… Read More
2019-12-09 18:43
I went to the exhibits at the American Society of Hematology today. All of them. Here are some highlights that I thought worth reporting. You really can learn a lot from th… Read More
2019-12-09 15:34
The importance of the Bone Marrow Microenvironment as a key contributor to the disease process underlying Multiple Myeloma, starting from the early precursor stage of Monoclonal Gammopathy o… Read More
2019-12-09 15:22
B-cell maturation agent (BCMA) is a very popular target for multiple myeloma therapies currently in development. Gareth Morgan, MD, FRCP, FRCPath, PhD of NYU Langone joins the Myeloma Crowd… Read More
2019-12-09 05:16
By Elise Martin Each December in the weeks following that year’s ASH Conference, the Multiple Myeloma Oncology Team at Dana Farber Cancer Institute hosts a symposium for myeloma patien… Read More
2019-12-09 04:39
Three fascinating studies were presented at ASH among the many approaches to providing heavily pretreated patients with effective and tolerable new treatments. This research and future… Read More
2019-12-09 04:36
What is CRISPR and how will it impact me? According to one myeloma expert, the biggest pre-ASH “buzz” this year centered around abstract 49: “First-In-Human Assessment of F… Read More
2019-12-08 14:07
What would practicing clinicians do in the case of patients who were relapsed or refractory to 3 or 4 different classes of drugs? Ravi Vij, MBBS, Washington University School of Medicine at… Read More
2019-12-06 23:16
The Friday symposiums before the American Society of Hematology meeting are some of the best reasons to attend the conference. In one morning session, several myeloma "debates" were presente… Read More
2019-12-06 23:11
Today at the American Society of Hematology 2019 conference in an MMRF session “Current Obstacles in Myeloma Management: Debating the Evidence, Dr. Saad Usmani and Dr. Ra… Read More
2019-12-05 19:18
Myeloma Crowd provides the final pre #ASH19 listing of the most relevant myeloma abstracts. The listing is intended to let the participants with an interest in myeloma to find and attend the… Read More
2019-12-04 21:51
There are around 120,000 people in this country living with multiple myeloma. About 32,000 of those were diagnosed within the last year. It’s understandable, then, that a great number… Read More
2019-12-04 19:03
On October 12, 2019, a Myeloma Crowd Round Table meeting was held in Atlanta, Georgia at the Emory Conference Center Hotel featuring five myeloma experts, including: Dr. Morie Gertz, Mayo Cl… Read More
2019-12-03 15:00
Donate to Myeloma Research Today It's Giving Tuesday! This year, we are donating 100% of Giving Tuesday proceeds to three cutting-edge myeloma research projects from our Myeloma Crow… Read More
2019-12-02 19:40
Multiple myeloma is a blood cancer that begins in the bone marrow. Some of the white blood cells can leave the bone marrow and enter the bloodstream. This is called circulating plasma cells… Read More
2019-12-02 17:39
In recent years there has been a movement to focus on attempts to detect myeloma early, and determine when to treat to prevent debilitating organ destruction. The infamous multiple mye… Read More
2019-11-26 22:32
Register Now Myeloma Crowd Round Tables are day-long patient education meetings featuring world class experts to assist patients and caregivers to make decisions about their treatment and c… Read More
2019-11-26 20:55
Donate to Giving Tuesday Today The holiday season is just around the corner, and we invite you to kick it off with us one week from today on Giving Tuesday (Dec 3)! Giving Tuesday is… Read More
2019-11-26 05:55
Those of us who already have Darzalex as part of our multiple myeloma treatment will unquestionably be familiar with the term ‘monoclonal antibody’ (mAb). The monoclonals are ant… Read More
2019-11-22 14:01
The American Society of Hematology 2019 (ASH) meeting will be held the first week of December. It is the largest meeting in the world on blood cancers. It is very important to know why these… Read More
2019-11-22 13:34
About 6.7% of the population in the United States has depression and it can have an impact on long-term outcomes when a blood cancer diagnosis is layered on. Multiple myeloma patients who ar… Read More
2019-11-22 05:15
Who are Myeloma Coaches? Myeloma Coaches come from a variety of backgrounds. Coaches may be a myeloma patient themselves, a caregiver, adult child or an extended family member of a myel… Read More
2019-11-22 05:15
Who are Myeloma Coaches? Myeloma Coaches come from a variety of backgrounds. Coaches may be a myeloma patient themselves, a caregiver, adult child or an extended family member of a myel… Read More
2019-11-18 16:20
On October 5, 2019, a Myeloma Crowd Round Table meeting was held in Chicago, Illinois at the Westin Chicago Lombard Hotel featuring five myeloma experts, including: Dr. Morie Gertz, Mayo Cli… Read More
2019-11-18 16:12
Using the antibiotic levofloxacin prior to stem cell transplant reduces death in newly diagnosed myeloma patients, according to a new study by UK myeloma research collaborators and My… Read More
2019-11-15 00:41
Phase III results of a recent study (TOURMALINE-MM4) show that Ninlaro (ixazomib) can prolong survival when used as maintenance therapy for multiple myeloma patients who are not fit enough t… Read More
2019-11-15 00:19
Myeloma Crowd has made it a priority to help the ASH participants interested in multiple myeloma to find the best and most relevant myeloma abstracts from the total of over 1000 myeloma abst… Read More
2019-11-15 00:01
Find or Become a Myeloma Coach By Jim Lubinsky Why would a comfortably retired person like me volunteer to be a Myeloma Coach? I assure you it's not for the money. The wind is strong and th… Read More
2019-11-14 23:45
The Journal of Oncology Pharmacy Practice published a research paper recently that was quite an eye opener about how well patients with a new diagnosis of a hematological cancer comply with… Read More
2019-11-14 23:18
Dr. Rafael Fonseca from the Mayo Clinic recently had a conversation Brian McMahon, founder and CEO of SparkCures, about myeloma clinical trials. You can view their interview below, where the… Read More
2019-11-14 04:22
Living with Myeloma also means living with an increased risk of infections, especially upper respiratory infections and those infections are tougher to control and treat as our immune system… Read More
2019-11-12 21:30
Each year over 30,000 doctors, researchers, patient advocates, and patients attend the American Society of Hematology (ASH) conference. To say it is confusing and overwhelming would be an un… Read More
2019-11-08 04:04
Find or Become a Myeloma Coach Written by Glori Traeder We just finished Terry's 100 day post stem cell transplant appointment with Dr. Jacob Laubach at Dana Farber Cancer Ins… Read More
2019-11-08 03:53
On September 28, 2019, a Myeloma Crowd Round Table meeting was held in Seattle, Washington at the Fred Hutchinson Cancer Research Center featuring six myeloma experts, including: Dr. Edward… Read More
2019-11-08 03:40
Clifford Reid, PhD Travera Interview Date: October 23, 2019 Thanks to our episode sponsor Summary Can you tell how well a myeloma treatment might work on your personal tumor by weigh… Read More
2019-11-01 18:13
In the largest ever study of smoldering myeloma patients from 13 major myeloma facilities, lenalidomide was found to delay disease progression, and helped prevent bone damage and end organ d… Read More
2019-11-01 04:54
A new CAR T treatment has been delivered to the first myeloma patient, using an off-the-shelf approach with donor T cells aimed at a new target, CS1. Most CAR T cell therapies in today's mul… Read More
2019-11-01 04:11
Wednesday, November 6 @ 10 am Pacific, 11 am Mountain, Noon Central, 1 pm Eastern Call In by Phone to Listen Live: (347) 637-2631 or Listen Live Via Computer Many myeloma patients are elderl… Read More
2019-11-01 03:23
We’ve seen data before by the Mayo Clinic and the University of North Carolina showing that multiple myeloma patients who are seen by a myeloma specialist live longer. A new, recent st… Read More
2019-11-01 02:57
By Brian & Elise Martin In June of 2017, I was diagnosed with active multiple myeloma (MM) after having been followed by the Dana Farber myeloma oncology team for MGUS/smoldering myeloma… Read More
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