2021-07-23 14:59
It's 13 years since I started this blog after our 20 week scan revealed that Jake would be born with a cleft lip and palate. The blog was a useful outlet for all my worries and concerns and… Read More
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A Cleft Lip And Palate...what Now?! Our Journey F Blog
20weekscan.blogspot.com
A blog about our son Jake, born in 2008 with a cleft lip and palate. I started it the day after the cleft was diagnosed and continue to write for people who turn up here every day after getting the same news. A cleft lip and palate is not the end of the world. Start at the first post and then read on...
2017-07-13 11:12
I wrote this in May of 2008 after the scan showed Jake (unnamed at the time) would be born with a cleft lip and possibly a cleft palate. I'm reposting it so it's the first post on the blog a… Read More
2017-06-30 08:57
The op was generally a success. Piet was a little disappointed with the lip revision when we went for the check up but the gum repair went perfectly. Perhaps Jake will want more surgery in h… Read More
2016-11-14 12:35
Today's the day of the bone graft/ gum repair. Feels like a long time coming; since the flurry of activity on this blog in the beginning, life has just become life and cleft stuff doesn't re… Read More
2016-09-01 14:30
Here's a timeline of what to expect from baby to (nearly) 8 years old.baby24 hrs post op3 yrs old5 yrs old7 yrs oldnearly 8 Read More
2016-09-01 14:15
Hi new visitors. If you're here, it's quite possibly because you just googled 'cleft lip blog'. Just like I did a little over 8 years ago. I didn't get much so I started this blog. In the fi… Read More
2016-06-02 15:37
I recently completed the Wales Velothon, an 86 mile cycle event through the Brecon Beacons. The hills were not fun but I managed it in just over 7 hours.At mile 30, it started to rain, bibli… Read More
2014-07-22 09:20
I feel a bit guilty that this blog is mainly about Jake as the reason I started it is so much less of an issue or even a thought these days. Plus there is another child; I do feel a bit sorr… Read More
2014-05-18 08:12
I didn't do much with my dad growing up as he was busy building a business. We're great friends now and I know, on some levels he probably wishes he'd spent more time with me. If, for no oth… Read More
2013-06-30 12:42
I've written a few times about when Jake's scar is more visible than others. It's normally when you see it in reverse like in the mirror or a selfie taken of him and me in a mirror. But then… Read More
2013-03-10 09:54
Jake and I went for lunch with a few of my friends yesterday. And just because I recently realised that he's the age of the boys whose photos I couldn't really relate to when we first got 't… Read More
2013-02-27 10:42
A week or so ago I asked Jake about what he'd done that day and he described having bumped into his friend during a visit to Wisley. He went on to tell me all about his friend and why he lik… Read More
2012-11-28 13:49
This weekend, I had the pleasure of four days with my beloved children. All to myself, how wonderful. *needle scratches off record*. What I mean to say is, last Friday I had to take a day of… Read More
2012-09-12 15:08
As these posts get fewer and further between, the less perhaps relevant they become to the people who turn up looking for information. As I wrote once before, we saw loads of photos of kids… Read More
2012-05-14 13:57
I have to admit I wasn't aware there was an awareness week for the reason I started this blog. I guess they're not doing such a great job! If anyone ought to be aware I should be...I suppose… Read More
2012-05-08 08:31
I always think it's funny when adults talk about how old their kids are in the same way kids do. That half a year or even the extra month is so important we specifically mention it. I suppos… Read More
2012-03-22 12:11
Although not many people read this blog, I'd like to apologise to those who do and may have expected a more timely update since the last post. I know you've been on tenterhooks since.The lon… Read More
2012-02-14 14:31
That's the date Jake will be going back to see the speech therapist. His first meeting was a few days after Freddie was born, so not far off a year ago. At that meeting he wasn't great at re… Read More
2011-12-12 17:20
Once again, this post starts with an acknowledgement of the time which has passed since the last. I was always very proud of keeping it so up to date, especially when you think about the mil… Read More
2011-10-14 10:58
Piet Haers - the professorRegular readers will recognise this name. He's the man who fixed Jake's smile back in January 2009.A man to whom we, and Jake will be forever grateful. Obviously be… Read More
2011-10-10 09:06
So, now both our boys have been christened. As I said in my little speech yesterday, we're not particularly religious but we are traditional and a church is the best place for a christening… Read More
2011-09-23 10:13
Anyone who has read this blog from the beginning, or at least from when Jake was born will know where this post is going.Before he was born I was mostly worried about sleep deprivation. The… Read More
2011-09-22 15:07
Although I'm a supporter of The Smile Train, there are lots of other very worthy cleft charities who do great work. And in fact The Smile Train was formed after its original founder, Brian M… Read More
2011-09-09 14:52
Since 2002 there have been 40 pregnancy terminations in the UK after a cleft (lip and / or palate) was diagnosed. 7 in 2010 alone.So, for anyone that made that unspeakable choice and, more i… Read More
2011-08-26 14:22
As ever, it's been ages since I last wrote anything Jake or cleft related on this blog. I've got a little photo / video idea up my sleeve, but other than that this blog has been neglected.Ag… Read More
2006-06-07 11:16
As ever, it's been a while but quality beats quantity; could be this blog provides neither but the lack of posts is, hopefully, an indication for any new visitors with recently diagnosed cle… Read More
2006-06-07 11:16
Not much of an update, just to say that Jake's getting on well at school. Even after moving from his first school half way through reception, he's settled in well, made new mates and is obse… Read More
2006-06-07 11:16
A few weeks ago we took Jake back to St. Thomas' hospital for his grand check up.The difference between a regular doctor or hospital appointment and one of these days is pretty big; as we ha… Read More
2006-06-07 11:16
I get lots of emails from people in the position we were 5 and half years ago but this one I wanted to share. (I do reply to them all by the way!).Like us, they'll be fine and in time the an… Read More
2006-06-07 11:16
Crazy to think but that was Jake's fifth Christmas. And Freddie's 3rd. I recently went to my brother in law's 40th birthday and the guys got table gifts of grey wigs (as he is nearly complet… Read More
2006-06-07 11:16
It's been a funny old autumn really. If I had to sum it up in a word that word would most likely be 'shit'.That might sound dramatic but the picture below is a woe-is-me selfie from A&E… Read More
2006-06-07 11:16
This is post is late. However due to the way cross rail ads work, it's still relevant. Sort of.I work in Wimbledon and each summer I am forced to contend with a few extra commuters on my mor… Read More
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