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2011-12-05 21:46
The theme of the past five years has been I just need a diagnosis. After all, I can deal with anything if I just know what I'm dealing with. I'm certainly not going to say that it was better… Read More
2011-11-18 19:50
It's been a while since I've posted anything up here, which actually is good news. For the first time in years, things have been pretty stable. Every three weeks, I go in for my lovely treat… Read More
2011-08-04 03:27
Over the past few years, we've been on a diagnostic roller coaster that has lasted far too long. All throughout this time, we've had the mindset that if they could just diagnose this, every… Read More
2011-08-04 03:27
A few weeks ago, I met with an oncologist at University of Chicago’s Duchossois Center of Advanced Medicine, which is the home to one of the best oncology centers in the nation. After… Read More
2011-01-13 17:37
In the past few months, Shawn's seen a few new doctors and has had lots more tests.  The current thinking from the gastroenterologist is that his nausea and weight loss are caused by hi… Read More
2010-11-26 05:04
Today I am so very thankful for all the wonderful people in our lives. Happy Thanksgiving to you all Read More
2010-11-04 19:20
I think the title of this blog is pretty accurate - this has indeed been a journey.  A complicated, twisted one - the path curves around this way and that, sometimes crossing itself and… Read More
2010-08-25 00:06
Let me make this very clear: I am quite grateful to have insurance at all, especially for Shawn.  His pharmacy bill alone would be over $600/month right now without insurance.On the oth… Read More

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