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Doing All Of The Things
2016-10-14 15:51
Our babysitter was telling me about how she was excited to see a friend that she hadn’t seen in a while. The friend said, “Can we do all of the things?” And our babysitter… Read More
Williams Syndrome Convention
2016-08-01 17:48
We drove for 9 hours to get to Columbus, Ohio…with 3 kids in the car. When we first signed up to attend the Williams Syndrome Convention, it seemed like the drive would be palatable… Read More
A New Twist
2016-04-15 15:05
So here’s a fun, new, little twist. We found out that Emmy has Celiac disease! She’s always been petite, which we attributed to Williams syndrome. But she’s also fatigued… Read More
Four And-a-half Years Old
2016-01-19 19:30
Here is our sweet, funny, smart, beautiful, persistent, and loving Emmy. She is everything I thought she would be. Not at first, though. Not when we found out about Williams syndrome. I was… Read More
A Potential Answer
2015-11-13 01:58
Theo came home tonight! And we have a potential answer. He did a barium swallow study today, and the speech pathologist noticed that he was close to having his drink go down the wrong… Read More
Theo Found The Playroom
2015-11-12 01:13
Today, we moved to a new floor in the hospital, and Theo was super happy to find the playroom! He’s been tied up to wires, but today he finally broke free for a bit and RAN… Read More
2015-11-10 21:40
Hi Everyone: Just a super quick update because I know we have many sweet people who are thinking about us (thank you!!!!). The surgery went ok. The doctor found the laryngomalacia that we su… Read More
Tomorrow Is The Day
2015-11-10 02:44
Thank you, everyone, for your sweet words and wishes. I can’t believe that we’re on the Eve of another potential surgery. I say “potential” because we’re sched… Read More
Here We Go
2015-10-29 15:10
I’ve been wanting to post about this for a while, but I’m so stinking depressed about it that it’s hard to find the words. I also have been trying, unsuccessfully, to… Read More
A Story About Sisters
2015-09-09 01:53
Charlotte wrote a “How To” story in school. The topic she chose was “How to Help Your Sister.” For her dedication in the beginning, she wrote, &l&helli…Read More

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Williams Syndrome Smile | How one smile changed many lives–for the better


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